Just say this or that

I slipped up and he told me he was ‘frustrated’.

Since admitting my relapse the other week I’ve pretty much put every practical step into motion that you can think of.

I moved into his for the week so I could have that really close support (supervision too). We sat and made a meal plan, did the food shop and helped me prepare what I needed to. We made food choices based off healthy levels of exercise throughout the week. Spoke to my therapist and even someone at work. New food diary, new journal and off to a new me(!).

But I slipped up.

I tried so hard to battle that Demon’s voice and I lost.

I had one slice of pizza and I couldn’t even cope with that.

I felt forced to eat it, pretty much. Everyone else was. It was leftovers from our department pizza party last night (a party I couldn’t stay at for more than an hour because socialising around the alcohol and pizza physically scared me).

I told myself say no. I ordered myself to refuse.

Some may tell me that it’s as simple as that.

‘You don’t have to eat it. You can say no.’

Saying no is hard though.

Why couldn’t I have said no?

A slice of pizza wasn’t on your meal plan. You’re weak for saying yes. You’re weak for diverting from the plan. You should be ashamed. You’re going to gain so much weight.

All these thoughts running through my head seconds after I finished.

I felt dissociated from my body after that. And all of a sudden it was ‘done’.

I promised to text him if I ever purged and so I did. But my text made him sad and ‘frustrated’. I don’t ever expect him to condone a purge and he refuses to say the words ‘its okay’ to get that across. But sometimes I just need that. I just need to hear the words ‘its okay, we’re going to get through it.’

I’m tired of not being okay. Tired of being up and down with this illness. I was doing quite well and I’m so disappointed I couldn’t keep it going. I’m more disappointed that I’ve made someone I care about incredibly sad.

Shaking these feelings of shame and disgust is tough. I always knew it would be.

I wish I could have said no to the slice but I’ve also been on that awful side of the spectrum where I said no to everything. Where saying yes was the hardest word to get out of my mouth.

Trying to find that balance and trust that it’s ‘safe’ to do so.

Trying to trust myself more than anything, I suppose.

 

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Back to Basics

 

Apologies as there may be some triggering thoughts here.

So, I thought I was doing okay and there were times I thought I was fine. Or at least the ‘Demon’ told me I was okay. Convinced me I didn’t need help. That there wasn’t an issue because what I was doing was keeping me ‘slim’.

Well you know what, what I was doing also made me sad. It also made me cry at my best friend’s birthday party because it made me so scared to be around food, drink and others. It made me angry at myself for not losing weight and it made me so incredibly insecure that my boyfriend would leave me if he found out.

I started to notice the ‘tricks’ coming back into play. Double/triple-checking that my housemates most definitely were not going to be home that evening. Going to toilets on floors at work that I knew nobody went to. That bag that sat in my wardrobe waiting for me to sneak it to the bins outside. Telling friends I had already eaten or would be eating later when I’d already planned to skip those meals.

And nobody really knew.

That in itself made it easier but deep down I almost ached for someone to ask. For that one person to see behind my smile and recognise that I was not okay. I was generally happy but I was in so much pain over what I was yet again doing to my body.

And then it happened. I hit rock bottom just as hard as previous relapses and I picked up the phone. I sat in the corner of my room, I suppose it felt safe, and I text my boyfriend and said point blank I needed him. That I needed to go round and I needed him to help me eat and to help me ‘keep it down’.

I was so scared he would leave or refuse just like others in the past. I was simultaneously scared that he would be upset with me or that I would hurt him by admitting what horrible cycle I’d fallen into once. I felt weak. Like a let-down. A failure.

Damaged.

That’s how I felt.

Damaged goods yet again at rock bottom.

My therapist leaving London last year hit me hard. I had seen him for four years and whilst I was in a really good place the thoughts of having to see someone else and start this process yet again scared the crap out of me and so when I needed help I didn’t feel like I could arrange to go see someone new. To open up about my not-so-great life once more.

But I told my boyfriend and my friends what I needed. For the first time in our relationship I didn’t wish he would offer what I needed…I simply asked. I asked to live with him for the next week or so because I felt I needed supervision. I asked him to sit down and help me plan my meals for the week and to ensure I stick to them regardless of if I tell him ‘I’m okay to change X and happy to eat Y instead.’ I asked him to help me send an email to my old therapist to ask for advice (which was the hardest step of all) and I asked him to come along to dinner with my parents in case I couldn’t handle it on my own. I asked him to help distract me when those thoughts about purging came running.

And he did.

I was upset that he cancelled seeing his friends because I felt that made me a burden but deep down it meant so much to me to know he cared that much.

And I literally told him everything.

I told him every thought that plagued my mind before and after each meal. I told him when I was scared to eat and when I wanted to be sick. I told him every perception I had of myself throughout the day. I told him every negative thought that crossed my mind and I told him of ‘tricks’ that I was ashamed of. I told him of some of my darkest periods of this illness and he just listened.

He didn’t judge, he didn’t comment, he just listened. And I told him that was exactly what I needed.

That’s all I ever need because, in a way, it simply helps me identify what is going wrong and decide what is going to help.

So we went and planned my meals and some gym sessions. He held my hand in the supermarket and he held my hand whilst I ate. We sent those emails and we spoke about the physical implications of this illness – what worries him the most…and whilst that wasn’t a fun conversation…it helped. Each time I ‘panic’ I try to think about the following:

  • I don’t want to have a heart attack due to the stress I’m placing on my body.
  • I don’t want to further damage my liver or kidneys.
  • I don’t want to become infertile.

Each time is ‘the last time’ and each time is one step closer to being that actual last time.

Sometimes the rigid planning makes me feel weak. I criticise myself for not being ‘normal’ and not being able to ‘do this on my own’. But I think I’ve finally after all this time admitted that the practical steps are things I am going to have to apply for the rest of my life. It’s not about needing them because I’m ill but rather that it’s a way of leading a healthy lifestyle.

So here I am, day five. Almost made it to a week since my last relapse.

 

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Today

I hate days like today.

The days where I hate every reflection of myself that I glimpse. The days where I have this uncomfortable feeling of disgust about myself and my image.

I hate these days where I become so scared, yet again, that I’m never going to be ‘perfect’. These days where my biggest fear is looking ‘fat’ this weekend.

I hate having days where the Demon plagues my thoughts with negativity. Days where I feel like I’m being swallowed whole.

Questioning every decision to eat, every exercise that doesn’t seem to shift any weight. Constantly questioning when, if ever, I’m going to feel good enough.

It screams at me that I’m huge and ugly. That I’m weak and disgusting. And the worst of it is, I appreciate these words aren’t true, that I am actually worth more than I think I am but that, in turn, makes me feel ashamed and embarrassed that I even have this illness in the first place.

I have these days where I do just fine, great in fact but I really hate that days like today seem to eradicate any progress I make.

Any step I took forward seems forgotten, lost in that dark space that swallows me whole.

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Me Time

It’s easy to forget just how long it’s been since you had some ‘me time’ and even easier to forget just how much you need it. Whether its a day or a week just to sort things out or take a moment to breathe.

I was at the hospital this morning and was told it would last up to 5 hours and so I booked a sick day off work. Turns out the appointment was a mistake…yeah, I don’t know why either.

But it was 9am so I came home and got back into bed. God knows after yesterday’s tough day at work this ‘sick day’ couldn’t have been timed much better.

I finally got some more of that sleep I’ve been missing out on lately. Managed to tidy my room up a bit. Came out for coffee and a slice of cake to try get things in order for next week (I’m going to Malaysia baby!)

I forgot how much I like chilling in a coffee shop with my laptop, writing a post or reading a book. I forgot how much of my ‘me time’ took place in coffee shops all over London last year. I thought I just liked the atmosphere but now I realise that it really formed a big part of my relaxation methods to just lower all my general stress. Taking some time for me, getting my thoughts down on paper or simply loosing myself in a story.

It’s hard to get lost with work when life is just constantly moving. Getting into that working routine (if you can call it a routine as my hours are so varied) whilst fitting in friends and seeing my boyfriend because I now only really have weekends to dedicate to them…it all means I haven’t been taking any time just for me.

So, I’ve decided, albeit a slightly late new years’ resolution, I’m going to make sure I spend some time each Saturday, out of the house on my own just doing something that makes me happy. Whether that’s a gym session, or walking round the park with my camera (my new hobby), or just sitting in a coffee shop with my laptop or a book and letting my thoughts run wild.

I miss my ‘me time’ but I never really realised it had gone because I genuinely love seeing my friends. And now that I work, the weekends go all too fast.

So here’s too taking a little bit more time out. A step back every now and then to just sit, with a cuppa, and breathe.

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Hello 2018

I’ve not really been one for New Year’s Resolutions. I’ve always found the ‘New Year, New Me’ to be slightly superficial but major congrats to anyone who fully commits to their resolutions!

However, I do like to reflect and make goals.  (Same thing, I know!!)

I was at a party again for NYE, the same one as last year and it really dawned on me how quick the year has gone and how much has damn well happened. If I try to compare 2017 to the year before, I can definitely say without a doubt that it was a lot more successful.

I passed my final degree with a distinction. I travelled solo to places I’ve always wanted to see and made more travel plans for 2018. I had some amazing times with my friends. I started my new job after graduating and met someone who makes me really happy. I’ve also made some massive steps in my recovery this year.

When I try to make myself goals or rules, I always make them too strict. When I inevitably don’t stick to them, I feel guilty and it can send me down that awful ED spiral. So, I might not be making strict resolutions this year but I’m going to try make some changes to the usual goals I would make.

Instead of losing weight, I want to exercise 3-4 times a week.

Instead of questioning if our relationship is ‘okay’, I want to learn to trust that it is.

Instead of spending all my weekends in London, I want to try visit my friends more.

I want to reduce how many coffees = ‘lunch’ and slowly increase my intake.

I want to distract myself when I’m stressed with a mentally healthy hobby.

I want to feel less insecure by tackling my insecurities head on.

I want to stop feeling like my past is going to drag me down.

The insecurities one is a big one for me. I know I’m getting less and less insecure in my relationship. I do worry that he won’t want the ‘broken one’ or that I’ll ‘never be good enough.’ He’s definitely not as much of a ‘talker’ – as in, I definitely say those three little words and some cheesy stuff a lot more…but the stupid thing is, I know that he does feel the same way about me.

Because of the relatively awful past I’ve had with guys, I look for affirmation a lot. I need to know people are happy with me and that things are going well, as if to protect myself from nasty surprises or horrible situations that might occur.

So, those words and actions confirming the words mean so much to me.

I want to work on needing less of this though. To stop looking for the signs he loves me. Naturally, if they stop all together then I may need to be concerned! But I’m only going to self-sabotage if I don’t learn to just relax a bit.

When I’m with him, it’s all perfect. But when I’m apart – that’s when the fear starts and I can get triggered. I figured I’d bury myself into a new hobby so I’ve got something just for me to enjoy on my own. Hello new camera and photography courses! I’ve always loved capturing memories and nature, being the country bumpkin that I am, so here goes!

Here’s to an even better year.

Happy New Year Everyone xxx

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Near-Exhaustion

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The pain cuts deep. It stings and it burns and I simply can’t hold back the tears that fall. Taken back to hospital just when I thought I was okay. Just like always, the hope comes crashing down, once relaxed but back on guard.

Always seem to be falling. Always dragged backwards against my will. Weighed down, feeling like I could drown.

It hurts more than the pain that has brought me back to hospital.

It hurts more than the pain I felt from June 18.

It aches and it hurts.

The word that there is something else wrong with me.

Another diagnosis, another condition, another something or other wrong with me.

Another broken piece.

When I feel ‘fixed’ I get broken again.

Whether it’s by family, friends, boys or myself…just constantly being broken.

And I am so tired. I’m exhausted.

‘Damaged Goods’ – that’s what I am and you can tell me I’m not but it won’t change how I feel right now.

Taken to surgery, kidney fixed. Endless list of medication for the time being and review booked in. It wasn’t even too serious; I’ll be better by the end of the month. But a month off work, a few weeks away from my best friend…it’s hard not to feel broken and lonely when that’s all that you can relate to.

I wasn’t able to eat – the illness took care of that. I didn’t have an appetite for 3 weeks and if I ate, my body couldn’t keep it down. Such a triggering situation and I’m working to keep it away. To not relapse over those feelings of ’empty’, the feelings I used to crave.

They said it’s likely to happen again but there’s not much I can do. Just drink excessive amounts of water and they’ll monitor the rest. Just when I was getting a grip on so many things, getting so much happier in myself, just something else. Always something else.

Dragging me back to reality.

My reality that I’ll never be normal. That I’ll always be a burden to those who have to help me. That I’ll always be ill, disabled…used…abused…broken or worse.

Wouldn’t it be nice to eat and drink without fear? To not have the nightmares? To not be rushed to hospital at 4am? To not have to have emergency surgery?

Give me a week and I’ll know it’s not true. I’ll realise I’m tough for dealing with all my crap. I’ll smile because I’ll be proud of every step I’ve had to take in my pretty shitty life.

I know what I’m like…I’ll feel awesome in no time.

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Times Like This

Woken up 4am Thursday morning with a pain in my left hand side. A stabbing pain that made me scream and cry and call out for my flatmates.

8 hours later and the hospital sent me home. Hand in hand with some paracetamol, they couldn’t work out what had happened to me and said I remained a ‘mystery’. Forever a mystery, even a friend commented that I am ‘always in hospital’. Times like this make me feel numb, never knowing what’s wrong other than that there is always something wrong with me. Times like this make me feel broken.

5am Friday morning and the pain was back. So was the hospital and the doctors claiming there was nothing wrong with me. I cried. My boyfriend was there to hold my hand this time and he held it tight as I cried. All of the pain, all the exhaustion and all the stress of being told I was ‘fine’. I’m always fine…

They sent me home with codeine this time and it seemed to do the trick but on Friday the pain never left and neither did he. He stayed the day and rang the doctor who told us to go back on the evening. And so we did. He held me tight and he took me back. He held me when the pain came back and he wiped away every tear. He held my hand whilst they did all their tests and he really helped that fear. He calmed me down. Though I could tell he was panicking, he knew what I needed and he stroked my hair, held me again trying to help me sleep.

Saturday morning, 2am, and the doctors had found me a bed but he wasn’t allowed to stay. That was the first time the fear came back and each time the pain woke me up I felt more scared, more lonely. Counting down the hours minutes and seconds until 2pm so that he could come back and hold me.

On regular morphine now, they ran more tests and eventually found the cause. Inflammation and water on my kidneys along with this teeny tiny 3mm stone. So again, but with an appointment for a specialist next week, they sent me home.

I didn’t expect him to stay. 3 days of hospital was surely enough but he spent Sunday evening with me. Helping me with every little thing. The smallest things that mean the most. I could tell he was worried but together we got through it. He kept me distracted when I needed it the most and he held me when the pain made me cry all over again. He set alarms on his phone to make sure I had medication at 12am, 4am and 8am. He even worked from home at my flat on Monday just to keep an eye.

Times like that make me realise just how much he cares. I’ve always known it, always sure of it but times like this make me feel loved. Spend so much time feeling worthless and unloved and times like that make me feel so wrong. Telling me he ‘wanted his Len back’ made me realise how much he really does. How much he wants me to get better in all aspects . Feeling cared for, loved. All I could want but it means so much more than it did before.

Right where I needed him when I needed him and yet he went above and beyond what I could have ever expected.

Times like this make me want to get better with my ED. What if that ‘one last purge’ made me this ill? It’s been a while but kidney damage can be caused by bulimia so what if…almost not worth thinking about but it is additional motivation.

Times like this, thanks to the illness but mainly thanks to him, make me want to become even healthier.

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