Back to Basics

 

Apologies as there may be some triggering thoughts here.

So, I thought I was doing okay and there were times I thought I was fine. Or at least the ‘Demon’ told me I was okay. Convinced me I didn’t need help. That there wasn’t an issue because what I was doing was keeping me ‘slim’.

Well you know what, what I was doing also made me sad. It also made me cry at my best friend’s birthday party because it made me so scared to be around food, drink and others. It made me angry at myself for not losing weight and it made me so incredibly insecure that my boyfriend would leave me if he found out.

I started to notice the ‘tricks’ coming back into play. Double/triple-checking that my housemates most definitely were not going to be home that evening. Going to toilets on floors at work that I knew nobody went to. That bag that sat in my wardrobe waiting for me to sneak it to the bins outside. Telling friends I had already eaten or would be eating later when I’d already planned to skip those meals.

And nobody really knew.

That in itself made it easier but deep down I almost ached for someone to ask. For that one person to see behind my smile and recognise that I was not okay. I was generally happy but I was in so much pain over what I was yet again doing to my body.

And then it happened. I hit rock bottom just as hard as previous relapses and I picked up the phone. I sat in the corner of my room, I suppose it felt safe, and I text my boyfriend and said point blank I needed him. That I needed to go round and I needed him to help me eat and to help me ‘keep it down’.

I was so scared he would leave or refuse just like others in the past. I was simultaneously scared that he would be upset with me or that I would hurt him by admitting what horrible cycle I’d fallen into once. I felt weak. Like a let-down. A failure.

Damaged.

That’s how I felt.

Damaged goods yet again at rock bottom.

My therapist leaving London last year hit me hard. I had seen him for four years and whilst I was in a really good place the thoughts of having to see someone else and start this process yet again scared the crap out of me and so when I needed help I didn’t feel like I could arrange to go see someone new. To open up about my not-so-great life once more.

But I told my boyfriend and my friends what I needed. For the first time in our relationship I didn’t wish he would offer what I needed…I simply asked. I asked to live with him for the next week or so because I felt I needed supervision. I asked him to sit down and help me plan my meals for the week and to ensure I stick to them regardless of if I tell him ‘I’m okay to change X and happy to eat Y instead.’ I asked him to help me send an email to my old therapist to ask for advice (which was the hardest step of all) and I asked him to come along to dinner with my parents in case I couldn’t handle it on my own. I asked him to help distract me when those thoughts about purging came running.

And he did.

I was upset that he cancelled seeing his friends because I felt that made me a burden but deep down it meant so much to me to know he cared that much.

And I literally told him everything.

I told him every thought that plagued my mind before and after each meal. I told him when I was scared to eat and when I wanted to be sick. I told him every perception I had of myself throughout the day. I told him every negative thought that crossed my mind and I told him of ‘tricks’ that I was ashamed of. I told him of some of my darkest periods of this illness and he just listened.

He didn’t judge, he didn’t comment, he just listened. And I told him that was exactly what I needed.

That’s all I ever need because, in a way, it simply helps me identify what is going wrong and decide what is going to help.

So we went and planned my meals and some gym sessions. He held my hand in the supermarket and he held my hand whilst I ate. We sent those emails and we spoke about the physical implications of this illness – what worries him the most…and whilst that wasn’t a fun conversation…it helped. Each time I ‘panic’ I try to think about the following:

  • I don’t want to have a heart attack due to the stress I’m placing on my body.
  • I don’t want to further damage my liver or kidneys.
  • I don’t want to become infertile.

Each time is ‘the last time’ and each time is one step closer to being that actual last time.

Sometimes the rigid planning makes me feel weak. I criticise myself for not being ‘normal’ and not being able to ‘do this on my own’. But I think I’ve finally after all this time admitted that the practical steps are things I am going to have to apply for the rest of my life. It’s not about needing them because I’m ill but rather that it’s a way of leading a healthy lifestyle.

So here I am, day five. Almost made it to a week since my last relapse.

 

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Today

I hate days like today.

The days where I hate every reflection of myself that I glimpse. The days where I have this uncomfortable feeling of disgust about myself and my image.

I hate these days where I become so scared, yet again, that I’m never going to be ‘perfect’. These days where my biggest fear is looking ‘fat’ this weekend.

I hate having days where the Demon plagues my thoughts with negativity. Days where I feel like I’m being swallowed whole.

Questioning every decision to eat, every exercise that doesn’t seem to shift any weight. Constantly questioning when, if ever, I’m going to feel good enough.

It screams at me that I’m huge and ugly. That I’m weak and disgusting. And the worst of it is, I appreciate these words aren’t true, that I am actually worth more than I think I am but that, in turn, makes me feel ashamed and embarrassed that I even have this illness in the first place.

I have these days where I do just fine, great in fact but I really hate that days like today seem to eradicate any progress I make.

Any step I took forward seems forgotten, lost in that dark space that swallows me whole.

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Hello 2018

I’ve not really been one for New Year’s Resolutions. I’ve always found the ‘New Year, New Me’ to be slightly superficial but major congrats to anyone who fully commits to their resolutions!

However, I do like to reflect and make goals.  (Same thing, I know!!)

I was at a party again for NYE, the same one as last year and it really dawned on me how quick the year has gone and how much has damn well happened. If I try to compare 2017 to the year before, I can definitely say without a doubt that it was a lot more successful.

I passed my final degree with a distinction. I travelled solo to places I’ve always wanted to see and made more travel plans for 2018. I had some amazing times with my friends. I started my new job after graduating and met someone who makes me really happy. I’ve also made some massive steps in my recovery this year.

When I try to make myself goals or rules, I always make them too strict. When I inevitably don’t stick to them, I feel guilty and it can send me down that awful ED spiral. So, I might not be making strict resolutions this year but I’m going to try make some changes to the usual goals I would make.

Instead of losing weight, I want to exercise 3-4 times a week.

Instead of questioning if our relationship is ‘okay’, I want to learn to trust that it is.

Instead of spending all my weekends in London, I want to try visit my friends more.

I want to reduce how many coffees = ‘lunch’ and slowly increase my intake.

I want to distract myself when I’m stressed with a mentally healthy hobby.

I want to feel less insecure by tackling my insecurities head on.

I want to stop feeling like my past is going to drag me down.

The insecurities one is a big one for me. I know I’m getting less and less insecure in my relationship. I do worry that he won’t want the ‘broken one’ or that I’ll ‘never be good enough.’ He’s definitely not as much of a ‘talker’ – as in, I definitely say those three little words and some cheesy stuff a lot more…but the stupid thing is, I know that he does feel the same way about me.

Because of the relatively awful past I’ve had with guys, I look for affirmation a lot. I need to know people are happy with me and that things are going well, as if to protect myself from nasty surprises or horrible situations that might occur.

So, those words and actions confirming the words mean so much to me.

I want to work on needing less of this though. To stop looking for the signs he loves me. Naturally, if they stop all together then I may need to be concerned! But I’m only going to self-sabotage if I don’t learn to just relax a bit.

When I’m with him, it’s all perfect. But when I’m apart – that’s when the fear starts and I can get triggered. I figured I’d bury myself into a new hobby so I’ve got something just for me to enjoy on my own. Hello new camera and photography courses! I’ve always loved capturing memories and nature, being the country bumpkin that I am, so here goes!

Here’s to an even better year.

Happy New Year Everyone xxx

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Near-Exhaustion

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The pain cuts deep. It stings and it burns and I simply can’t hold back the tears that fall. Taken back to hospital just when I thought I was okay. Just like always, the hope comes crashing down, once relaxed but back on guard.

Always seem to be falling. Always dragged backwards against my will. Weighed down, feeling like I could drown.

It hurts more than the pain that has brought me back to hospital.

It hurts more than the pain I felt from June 18.

It aches and it hurts.

The word that there is something else wrong with me.

Another diagnosis, another condition, another something or other wrong with me.

Another broken piece.

When I feel ‘fixed’ I get broken again.

Whether it’s by family, friends, boys or myself…just constantly being broken.

And I am so tired. I’m exhausted.

‘Damaged Goods’ – that’s what I am and you can tell me I’m not but it won’t change how I feel right now.

Taken to surgery, kidney fixed. Endless list of medication for the time being and review booked in. It wasn’t even too serious; I’ll be better by the end of the month. But a month off work, a few weeks away from my best friend…it’s hard not to feel broken and lonely when that’s all that you can relate to.

I wasn’t able to eat – the illness took care of that. I didn’t have an appetite for 3 weeks and if I ate, my body couldn’t keep it down. Such a triggering situation and I’m working to keep it away. To not relapse over those feelings of ’empty’, the feelings I used to crave.

They said it’s likely to happen again but there’s not much I can do. Just drink excessive amounts of water and they’ll monitor the rest. Just when I was getting a grip on so many things, getting so much happier in myself, just something else. Always something else.

Dragging me back to reality.

My reality that I’ll never be normal. That I’ll always be a burden to those who have to help me. That I’ll always be ill, disabled…used…abused…broken or worse.

Wouldn’t it be nice to eat and drink without fear? To not have the nightmares? To not be rushed to hospital at 4am? To not have to have emergency surgery?

Give me a week and I’ll know it’s not true. I’ll realise I’m tough for dealing with all my crap. I’ll smile because I’ll be proud of every step I’ve had to take in my pretty shitty life.

I know what I’m like…I’ll feel awesome in no time.

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A Badge That Says ‘I’m Different’.


I was given this badge. This nice blue badge which, now that I mention it out loud, is appropriately coloured. On this lil blue badge is the London Underground sign with a phrase stating: ‘Please Offer Me a Seat’.

I was born looking normal, I grew up looking normal (well to the extent I hid my arm) and I definitely still look normal. No body can see the pain I’m in. Friends wouldn’t really know the extent of the pain I’m in on a daily basis.

Why? Because I don’t want to be that one who complains all the time and nor do I want to feel like a burden to anyone. So I smile and get on with my pain treating it as and when I need to.

I wish that method could apply to my mental pain, but I digress.

Standing up on a packed tube where I’m too small to reach any poles to steady myself is painful. All my effort goes into trying to balance and it hurts. My leg is throbbing from morning all the way through til that tube journey home.

And so I was given a badge. In the hope that people wouldn’t question my invisible disabilities and allow me to sit.

And most of the time they do. The rest of the time, I’m probably way too small for people to even notice me in the first place and that’s fine. What’s also fine, is those who don’t give up their seats because they could be like me.

It hurt me though, when I got it. I felt like I was given this great big blue badge that screamed ‘I’m disabled!!!’. I felt ashamed that people would look and question what could possibly be wrong with me that warrants me having such a badge.

I felt broken.

It represented this huge feeling of being broken. Of having something wrong with me. Of not being normal.

It reminded me of those feelings of shame for having physical issues growing up. The feelings of hurt when no one would believe I was couldn’t do things or was in pain. The memories of being bullied for being different.

I still get embarrassed. I see people staring but I know they’re going to. One person was cruel but that was one in god knows how many hundreds I’ve come across on my tube journeys this past month.

But being able to get a seat for most of my journey has really helped reduce the pain I get in my leg. Just like writing helps reduce the pain in my head and heart.

It’s nice to feel less pain in my legs.

It’s nice to be writing again.

I can’t believe it’s been so long since I last wrote anything and it was an unexpected message that actually got me wanting to write again.  It’s not been plain sailing since then but I’m sure I’ll start telling you all everything that’s happened soon enough!!

Thank you for that message ❤

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‘Full of Joy’


I haven’t written for almost a month, in fact, I think it’s been almost exactly a month since I last wrote. Most of the times when I go silent it means something’s up, something I’m not quite ready to tackle head on but I’m pleased to say this time it’s quite the opposite.

To the north of mainland Greece there’s a teeny tiny island called ‘Skiathos’ and it is by far my favourite. I first came here when they told me I was too fat to represent my country at a Paralympic Games and whilst I arrived all doom and gloom I definitely left, yet again, quite the opposite.

So where else would I head to when I had about a month to myself? Where else would I go where my friends are more like family than my own? So yes, you guessed it, here I am in my favourite place in the entire world. 24 days down, 2 to go.

I thought I’d get bored or lonely at least once because just under four weeks is a long time. But fact of the matter is, I simply haven’t and I’ve loved every single minute. I’ve been meaning to write but I’ve just been so distracted with sun, sea and my family that I wish was my own. The only reason I’ve finally managed to sit down and type something out is because it’s stormy and windy today that I don’t really have any other option!

The first weeks were tough. I couldn’t help but compare myself to everyone else I saw around me. How flat I perceived their stomachs to be. How I perceived myself in comparison. I restricted and I purged but I also did get it under control. 12 weeks…2 episodes of purging. I tried to deal with it healthily and I will admit I struggled but being around old friends and adoptive family filled me with so much joy – there’s a phrase Greeks use in response to the question, ‘How are you?’ – mi hara – ‘full of joy’ and I think that in itself is a beautiful response.

One day I woke up insanely happy, I felt some sort of spring in my step and I even later in the day cried over text to my bestest. I simply felt happy. I’ve tried to change how I word things – I would say ‘everyone is so much skinnier than me’ and today I noticed I wrote ‘how I perceived…’ . Trying to develop my awareness of my eating disorder symptoms. I used to write I missed who I used to be before my ED and during this trip I realised I should never have focused on becoming a past version of myself because, simply put, we all change. And, yes, I’ve experienced some horrible things but that doesn’t mean I won’t become the best version of myself as a result.

I told him I loved him. The three words slipped out after weeks of me trying to hold them back. I knew I wouldn’t hear them said to me and that was okay but naturally not the greatest feeling. It got to me a bit but now? I’m completely different. I knew I wouldn’t hear them but I still wanted to say how I felt. I didn’t need to hear them back regardless of how much I want to hear them one day. I was brave enough to put my heart on the line because I cared about being honest with my feelings – for myself as much as for him.

Working really hard to separate my inecurities from reality.

Don’t get me wrong, it’s a scary sorta limbo. I know we’re pretty awesome and the fact he’s made a noticeable effort to text more as I’m more of a ‘communicator’ so to speak, the dedicated weekly face time slot and the simple fact that if I need him, really need him, he’s there…and yeah, we’re pretty awesome together…there’s no need to worry. I don’t want to reach that stage where I may have to deal with a guy who decides he’s never gonna love me but I can’t live in fear of something that’s only got a 50% chance of occurring. I’d probably self-sabotage it all that way anyway.

He does say something to me though – ‘I like you an absolute lot’

I think I like that more than ‘I love you’

Bit like how I prefer the Greek saying of ‘I’m full of joy’ rather than ‘I’m good/fine/okay’ because when I say the latter, some of it is a lie…but I’m always full of joy so to speak as I’m one of those people who finds happiness in the simplest of things, always happy even if I’m not okay with my body shape or my perception of myself.

Maybe I’ll start focusing on trying to be full of joy. Focused on the little things that bring me happiness rather than the things that make me feel okay about myself…

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Almost There

My 25th birthday yesterday and to celebrate my quarter-of-a-century-ness the opticians delivered my first ever pair of glasses. Seven years of reading and writing and reading and writing and reading some more at university has left my eyes a little bit worse than where they started off.

Perfectly lovely birthday even if I did panic a little bit at the restaurant we went to. More than an hour in the queue but between you and me, totally worth it. Even lucky enough to be given one of the best tables in the room. Luckier to have pretty awesome company.

I got my exam results today.

I got a distinction in my degree.

That means I’ve kept my job.

That means, after all this time, after all this hard work, after everything that could go wrong and did go wrong, I’m finally going to be a Trainee Solicitor.

At one of the top law firms in the country too.

I really messed up one of my exams, I knew I did and I was worried the mark was going to cost me my job but turns out I passed it. Only just mind; I passed the exam by 5 marks and God did it bring down my average, but, I passed.

And even though it was my lowest mark I’m incredibly proud of it because though I majorly struggled I tried my damned hardest to learn everything I needed and coming out the exam I knew I was close to the pass mark, nothing more but potentially a lot less.

But it doesn’t matter how much I got past that pass mark because I got past it. All I needed to do was get over the pass mark and I would still be employed come September. The firm could take my job away if I didn’t get a certain mark in my degree but they can’t because I did it.

I made it.

Well, almost…

I still have a week to finish the business masters the firm wants me to do and I’m half way through. The finance element has killed me mentally, I’ve never cried over work but that made me cry four times. However, I currently have 2,432 words of my education left, so I suppose I best get back to it…

For once, it’s not really been a bad week in my world.

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