Just say this or that

I slipped up and he told me he was ‘frustrated’.

Since admitting my relapse the other week I’ve pretty much put every practical step into motion that you can think of.

I moved into his for the week so I could have that really close support (supervision too). We sat and made a meal plan, did the food shop and helped me prepare what I needed to. We made food choices based off healthy levels of exercise throughout the week. Spoke to my therapist and even someone at work. New food diary, new journal and off to a new me(!).

But I slipped up.

I tried so hard to battle that Demon’s voice and I lost.

I had one slice of pizza and I couldn’t even cope with that.

I felt forced to eat it, pretty much. Everyone else was. It was leftovers from our department pizza party last night (a party I couldn’t stay at for more than an hour because socialising around the alcohol and pizza physically scared me).

I told myself say no. I ordered myself to refuse.

Some may tell me that it’s as simple as that.

‘You don’t have to eat it. You can say no.’

Saying no is hard though.

Why couldn’t I have said no?

A slice of pizza wasn’t on your meal plan. You’re weak for saying yes. You’re weak for diverting from the plan. You should be ashamed. You’re going to gain so much weight.

All these thoughts running through my head seconds after I finished.

I felt dissociated from my body after that. And all of a sudden it was ‘done’.

I promised to text him if I ever purged and so I did. But my text made him sad and ‘frustrated’. I don’t ever expect him to condone a purge and he refuses to say the words ‘its okay’ to get that across. But sometimes I just need that. I just need to hear the words ‘its okay, we’re going to get through it.’

I’m tired of not being okay. Tired of being up and down with this illness. I was doing quite well and I’m so disappointed I couldn’t keep it going. I’m more disappointed that I’ve made someone I care about incredibly sad.

Shaking these feelings of shame and disgust is tough. I always knew it would be.

I wish I could have said no to the slice but I’ve also been on that awful side of the spectrum where I said no to everything. Where saying yes was the hardest word to get out of my mouth.

Trying to find that balance and trust that it’s ‘safe’ to do so.

Trying to trust myself more than anything, I suppose.

 

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Today

I hate days like today.

The days where I hate every reflection of myself that I glimpse. The days where I have this uncomfortable feeling of disgust about myself and my image.

I hate these days where I become so scared, yet again, that I’m never going to be ‘perfect’. These days where my biggest fear is looking ‘fat’ this weekend.

I hate having days where the Demon plagues my thoughts with negativity. Days where I feel like I’m being swallowed whole.

Questioning every decision to eat, every exercise that doesn’t seem to shift any weight. Constantly questioning when, if ever, I’m going to feel good enough.

It screams at me that I’m huge and ugly. That I’m weak and disgusting. And the worst of it is, I appreciate these words aren’t true, that I am actually worth more than I think I am but that, in turn, makes me feel ashamed and embarrassed that I even have this illness in the first place.

I have these days where I do just fine, great in fact but I really hate that days like today seem to eradicate any progress I make.

Any step I took forward seems forgotten, lost in that dark space that swallows me whole.

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Near-Exhaustion

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The pain cuts deep. It stings and it burns and I simply can’t hold back the tears that fall. Taken back to hospital just when I thought I was okay. Just like always, the hope comes crashing down, once relaxed but back on guard.

Always seem to be falling. Always dragged backwards against my will. Weighed down, feeling like I could drown.

It hurts more than the pain that has brought me back to hospital.

It hurts more than the pain I felt from June 18.

It aches and it hurts.

The word that there is something else wrong with me.

Another diagnosis, another condition, another something or other wrong with me.

Another broken piece.

When I feel ‘fixed’ I get broken again.

Whether it’s by family, friends, boys or myself…just constantly being broken.

And I am so tired. I’m exhausted.

‘Damaged Goods’ – that’s what I am and you can tell me I’m not but it won’t change how I feel right now.

Taken to surgery, kidney fixed. Endless list of medication for the time being and review booked in. It wasn’t even too serious; I’ll be better by the end of the month. But a month off work, a few weeks away from my best friend…it’s hard not to feel broken and lonely when that’s all that you can relate to.

I wasn’t able to eat – the illness took care of that. I didn’t have an appetite for 3 weeks and if I ate, my body couldn’t keep it down. Such a triggering situation and I’m working to keep it away. To not relapse over those feelings of ’empty’, the feelings I used to crave.

They said it’s likely to happen again but there’s not much I can do. Just drink excessive amounts of water and they’ll monitor the rest. Just when I was getting a grip on so many things, getting so much happier in myself, just something else. Always something else.

Dragging me back to reality.

My reality that I’ll never be normal. That I’ll always be a burden to those who have to help me. That I’ll always be ill, disabled…used…abused…broken or worse.

Wouldn’t it be nice to eat and drink without fear? To not have the nightmares? To not be rushed to hospital at 4am? To not have to have emergency surgery?

Give me a week and I’ll know it’s not true. I’ll realise I’m tough for dealing with all my crap. I’ll smile because I’ll be proud of every step I’ve had to take in my pretty shitty life.

I know what I’m like…I’ll feel awesome in no time.

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Times Like This

Woken up 4am Thursday morning with a pain in my left hand side. A stabbing pain that made me scream and cry and call out for my flatmates.

8 hours later and the hospital sent me home. Hand in hand with some paracetamol, they couldn’t work out what had happened to me and said I remained a ‘mystery’. Forever a mystery, even a friend commented that I am ‘always in hospital’. Times like this make me feel numb, never knowing what’s wrong other than that there is always something wrong with me. Times like this make me feel broken.

5am Friday morning and the pain was back. So was the hospital and the doctors claiming there was nothing wrong with me. I cried. My boyfriend was there to hold my hand this time and he held it tight as I cried. All of the pain, all the exhaustion and all the stress of being told I was ‘fine’. I’m always fine…

They sent me home with codeine this time and it seemed to do the trick but on Friday the pain never left and neither did he. He stayed the day and rang the doctor who told us to go back on the evening. And so we did. He held me tight and he took me back. He held me when the pain came back and he wiped away every tear. He held my hand whilst they did all their tests and he really helped that fear. He calmed me down. Though I could tell he was panicking, he knew what I needed and he stroked my hair, held me again trying to help me sleep.

Saturday morning, 2am, and the doctors had found me a bed but he wasn’t allowed to stay. That was the first time the fear came back and each time the pain woke me up I felt more scared, more lonely. Counting down the hours minutes and seconds until 2pm so that he could come back and hold me.

On regular morphine now, they ran more tests and eventually found the cause. Inflammation and water on my kidneys along with this teeny tiny 3mm stone. So again, but with an appointment for a specialist next week, they sent me home.

I didn’t expect him to stay. 3 days of hospital was surely enough but he spent Sunday evening with me. Helping me with every little thing. The smallest things that mean the most. I could tell he was worried but together we got through it. He kept me distracted when I needed it the most and he held me when the pain made me cry all over again. He set alarms on his phone to make sure I had medication at 12am, 4am and 8am. He even worked from home at my flat on Monday just to keep an eye.

Times like that make me realise just how much he cares. I’ve always known it, always sure of it but times like this make me feel loved. Spend so much time feeling worthless and unloved and times like that make me feel so wrong. Telling me he ‘wanted his Len back’ made me realise how much he really does. How much he wants me to get better in all aspects . Feeling cared for, loved. All I could want but it means so much more than it did before.

Right where I needed him when I needed him and yet he went above and beyond what I could have ever expected.

Times like this make me want to get better with my ED. What if that ‘one last purge’ made me this ill? It’s been a while but kidney damage can be caused by bulimia so what if…almost not worth thinking about but it is additional motivation.

Times like this, thanks to the illness but mainly thanks to him, make me want to become even healthier.

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Self-inflicted Mind Games


I’ve been back in London a week now and straight into my new house with my new housemates – two very good friends of mine and between you and me, once we get all the boring general admin such as bills and the like sorted, we’ll be ticking over just fine.

However, I feel so incredibly nervous and scared. One friend knows I am recovering from bulimia and the other doesn’t and I have this inexplicable feeling that I’m going to be watched and monitored. Even though it would be from such a good place deep in her heart, I just don’t want pressure to eat…maybe because I still struggle to eat in front of others…because I know it’s still something I’m working through.

It’s funny because I was scared to weigh myself but this time when I plucked up the courage I was actually lighter than I thought I would be. I shook my head and thought, no, this can’t be right, I must be heavier. And so I moved the scales around…same weight…I went and grabbed my laptop…I was heavier…removed the laptop…back to the initial weight.

I was convinced the scales must be broken. Convinced there was simply no way I could have lost some weight whilst away.

Impossible.

But I just realised something this evening.

Three days ago I had to register with a new Doctor’s Surgery and they asked me to weigh myself on some special digital machine thingy-magigy. It told me I was half a kilo heavier than what my scales had told me. This was with some pretty heavy clothes.

But the implication of this simply didn’t register with me.

But today I realised that maybe my scales are correct and my mind is wrong. Why don’t I believe the solid evidence that my regular eating has helped me lose some weight in a healthy manner? Why am I convinced I must be so much heavier than these scales are telling me?

It’s such a vicious circle. If the number was higher I’d be unhappy and yet it’s lower than expected and I’m still unhappy because I’m convinced I’m bigger than what I am?

A lower number urging me to restrict or purge because surely the number is wrong.

It’s a tough one to get past.

Then again, my friends were happily lifting me onto their shoulders last weekend so this short arse over here could actually see something! That in itself tells me that my perception is distorted. I’m not the number I think I am. Even if I was, surely I’m worth more than that anyway.

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Knowing a Feeling 

I learnt the hard way to not get my hopes up. Always let down, always dropped, always left a little bit more broken than before. Family, friends, coaches, GB team staff and, of course – boys, would remind me why I was ‘stupid to think that this time would be any different.’

So yes, I learnt the hard way not to get my hopes up. I learnt to not look too far into the future, to not see ‘meaning’ in anything and to expect the worst until I saw something confirmed on paper.

And yet, deep down, my hopes always remained high.

And I suppose my hopes are still high. My optimism gets commented on frequently and those who know everything will comment they can’t understand why.

Why, after everything would I still be the girl who is still so full of happiness and hope that one day, everything will be okay?

Thing is, I could easily be the cold-stone-hearted-ice-queen after everything and everyone would understand but it would be allowing those experiences to deprive myself of  potential happiness. Yes, people have hurt me in some of the worst ways imaginable but I don’t want that to prevent me from finding future happiness and inner peace.

But the beautiful paradox continues to exist. I still fear the worst. I simultaneously drag my hopes down just as I start to put my faith in them. The thing is, what I know and what I feel are unfortunately two extremely different things.

I know developing an eating disorder wasn’t ‘my fault’ but I feel ashamed and disappointed in myself for having one.
I know my friends would do anything to help me but I feel that I’m a burden they will wish they didn’t have.
I know my boyfriend wants to be with me but I feel that he’s bound to prefer someone with less issues. Less damage. Less of a past she couldn’t control.

know that three meals a day won’t make me gain weight but I feel incredibly fat for wanting to eat, let alone even eating.
know I’ve not purged for more than four weeks but I feel like that doesn’t truly mean anything.
I know in the past I have found ways to purge in secret when surrounded by others but I feel like that doesn’t mean anything regarding these last four weeks.

In his words, I’m ‘kicking ass’ and I know that I am but I feel like I’ve achieved nothing.

I’m still working on developing my self-compassion that my therapist and I worked on. Allowing myself to appreciate that there will always be days where I do get hurt and need support, or days I fall down and need people to pick me up but none of that makes me a failure. Loving myself for the things I know rather than hate myself for the things I simply feel. And of course it’s difficult to not believe the awful things people have made me feel, but if it was easy then it wouldn’t be holding me back right now…

It’s potentially the hardest part of my recovery (in the necessary circumstances) feeling what I know rather than only knowing what I let myself feel.

At least these people always help me work out the difference:

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Hello

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I have a weekly face time catch up with a best friend of mine. A best friend I’ve actually only known two years, a best friend who’s been a best friend possibly less than a year but, regardless, the best of the best.

Doesn’t matter how long you’ve known someone, all that matters is that they’re there.

But when you realise they are there, even when you didn’t expect it because you hadn’t asked them to be…that’s when you know just how special they are.

I cancelled last weeks’ FaceTime because I was incredibly stressed out for reasons discussed previously and also on that day Dad decided to visit.

I half-reluctantly met him and it was perfectly pleasant but I’m purely going through the motions now (I’m so fed up with him and would be happier without a connection…but mum begs me to stay in touch).

Anyway, a perfectly pleasant lunch ends with him saying its time I met my half-sibling. He spoke about him so casually throughout lunch, ‘oh Jason has exams soon…oh Jason’s doing this that and the other’ and it’s weird to hear my dad talk oh so normally about a half sibling he surprised us all with a few years ago. The half-sibling he dotes on so much more than he ever did me. One of the reasons I had to pick my mum up all those years ago, one of the reasons there’s no money left and mum can’t pay her bills. I wasn’t even 7 years old when dad started the affair, barely 15 when the kid came along and just 19 when I found photographs and letters and skype messages telling the truth. So much hurt from a man that never cared and yet mum asks me to ‘be nice because he’s still your father and he’s so stressed out.’

Oh yeah, let me just put the man who hurt me over the years, who hurt all of us, first. Let me put him first simply because he has the title of father when all he is in reality, is a glorified sperm donor.

I broke down when I got home after lunch – my head was all over – food was too much to contemplate and I hadn’t been sleeping due to nightmares and I simply didn’t want to be alone so I went to his house to spend the night. I text her apologising for cancelling with no other explanation other than ‘I’m really stressed out’ and she completely understood because great friends always understand.

But you know what an even better friend does?

This…

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I got this through the post on Monday and I cried. It took me completely by surprise and I cried. I sat on the kitchen floor and cried. I cried because I was slowly realising how much support I have. I’ve never doubted her support but this simply just got me. It went straight to my heart and seemed to release all that pain.

I hadn’t even told her any of the reasons why I cancelled because I’d been so busy the entire week. But that’s the thing. She didn’t need to know the ins and outs to be able to help me. She just knew something was up and that small postcard contained more support than you can even begin to imagine. A small postcard that has pride of place on my bedroom wall. A new daily reminder I can get through all this. A daily reminder that there are people there even when I don’t expect them to be.
Especially when they realise I need them before I do.
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