Just Because

Just because you see the smile doesn’t mean there isn’t anything hurting behind my eyes. Just because you see the food being eaten doesn’t mean there isn’t any fear behind every mouthful that I swallow.

I’m not pretending to be okay. I’m fighting to be okay.

And each day is getting better…I think so, anyway.

In fact, I know so.

But from the moment I wake to the moment I shut my eyes my mind is plagued with fears and doubts and questions. When will I eat? What is on my meal plan? Will I be hungry at the correct times and what if I’m not hungry at the right times? Will I lose weight? Am I going to gain weight? What if I break my plan and have a biscuit in that meeting at work? What if I want to purge later? What if I end up purging? What should I do tomorrow to make up for any slip ups today?

Even if I have my three meals and my one hour of exercise my mind is plagued with these thoughts and you know what, it’s tiring as hell.

It’s been 4 months of meal plans and increasing my exercise week-by-week and a massive reduction in both my restrictive and purging habits.

And here we are, still trundling along.

After I initially stopped the purging I did gain a few pounds, but in all honesty (other than the pesky number on the scales ruining my mood) it didn’t really change me or my body that much. I didn’t instantly become fatter from stopping the purging.

But I still had hoped that 4 months down the line, that I would have physically changed.

I do know I have some body fat to lose. I just desire my stomach to be flat. My stomach is the only part of me that I am so incredibly self-conscious about. It always has been.

Even as I am in the process of writing this out I simultaneously wish I didn’t care about my weight. I’ve sometimes spoken about wishing I was the girl I used to be who didn’t care about my weight or what people said. I realise today that, that’s a lie.

I was forced to pretend everything was okay. I supressed every single one of my emotions by putting on a smile and learning how to laugh the pain away (and comfort eating in the process). I wasn’t ‘me’…I wasn’t allowed to be me.

No wonder I snapped one day.

Is it normal to miss your illness?

I don’t know if ‘miss’ is the right word.

I don’t enjoy purging. I don’t enjoy restricting. I don’t miss not being able to get out of bed for being weak. I don’t miss the burning in my throat day and night. I don’t miss the cramping in my stomach from laxative abuse but maybe I miss all the lies it was telling me. The lies I believed.

Maybe I miss the false sense of control it gave me. The reassurance that I was going to be ‘better’ if I did what it was suggesting I do.

I need to find a positive in this post and I can find a good one – yes I initially gained some weight when I started eating 3 meals a day, but I haven’t gained more than those initial 4 pounds.

I haven’t suddenly become the fat girl I was scared of becoming. The fat girl I am still scared of becoming. I’ve just sort of hovered in this middle ground…little bit heavier…but a whole lot healthier.

I’m currently maintaining.

I’m writing this because I have a little bit of free time at work and I want to purge.

I want to purge even though I had 1 sandwich for lunch because…well let’s try to be honest…because deep down I don’t think this is about weight loss…I’m a little overworked, a little tired, a little self-conscious and a friend being cruel in the way she spoke about my ED a few nights ago has left me feeling vulnerable.

If I break it down further, the ‘fight’ on Sunday night left me remembering those who have used my ED to their advantage to control me. It made me remember and feel feelings of worthlessness and being taken for granted. It made me feel uncared for and ‘dumped’.

Let’s be honest, it just made feel shit.

Well at least I can pin point what’s triggering me this week.

I’m trying to remember that I’m a whole lot healthier than I was 4 months ago….4 pounds ago…

I wish being healthier didn’t hurt as much as it does right now.

They say actions speak louder than words but, just because my actions are those of a normal person, doesn’t mean the words my brain deals with aren’t deafening.

 

It’s Okay

Girls Night Out had been planned for at least 2 months and, now that I think about it, I was the one who had initiated the plans in the first place. We were to go out on the Friday but as soon as the preceding Monday arrived I was filled with guilt and nerves.

I was nervous I would be the biggest. I was nervous that none of my clothes would fit. I was nervous about what the numbers were saying to me, whether it was the calories, the scales, or the dress sizes.

I then blamed myself for the fact I didn’t want to go.

I felt guilty that the thought of a night out scared me. I felt guilty that I was too petrified to try on outfits. I felt guilty that I just knew I wouldn’t be having as much fun as my friends because my thoughts were focused elsewhere.

Add on the stress of a very demanding deal at work all week with close to midnight finishes on a daily basis…before I knew it, it was Friday and I felt physically ill.

Truth be told, I was tired. I was so incredibly exhausted from my mental battles, work. gym and I was desperate to sleep. Every morning I wake up and there’s new fights in my head. The voice asking when am I going to eat? What am I going to eat? Will I purge? Will I restrict? Will I fail and do both? What are others going to eat? Am I going to gain weight? Will I go to the gym to make up for it? When should I eat? Am I strong enough today? Should I eat that? Why did I eat that?

Yadda, yadda, yadda.

Along came Friday and I was hurting, I was exhausted and I couldn’t do it.

I put a dress on and did my makeup but then told them I wasn’t going out and went and cried in my bedroom. I told myself I was weak. That I had failed because I hadn’t been strong enough to go out.

But then I tried to turn that thought around. I’ve been working my way through a Compassionate Mind Therapy workbook aimed at (as you can guess) developing my compassionate mind. Me and my old therapist used to focus on CMT and it’s actually been incredibly refreshing and enlightening to bring myself back to this form of therapy.

Long story short, we have 3 systems: threat, drive and soothing. They all interact with one another and if you imagine drawing how active they are in my life as circles on a piece of paper, my threat circle is HUGE, my drive circle quite large and my soothing circle? It’s basically non-existent.

Experiences and memories either help the circles grow or shrink and I need to focus on shrinking how big that threat voice is and allow the soothing voice to grow.

I have spoken about my past in many previous posts so there’s no need to go into too much detail but the book encouraged me to think about why my threat voice is so predominant in my everyday life.

I thought about my family  who criticised me for being overweight as a child. Instead of finding a healthy way for me to lose weight they told me that because of my weight and my disabilities that I was an embarrassment and no one would love me. I thought about the children who bullied me for being so fat and the boys who teased and taunted me. thought about the boys who had taken me for granted, used me, abused me.

I thought about the coaches who criticised every sporting achievement, telling me it was never good enough because I was fat. They put me under so much pressure to ‘make it’ and only ever talked about my weight, criticising it in front of others, embarrassing me in front of the team. They never noticed when I became a really dangerous weight, all they saw was the ‘fatter’ athlete I had been previously.

I thought about how much pain my dad’s long-term affair and money issues brought to my family. I thought about my cerebral palsy, epilepsy, Volkmann’s contracture, psoriasis and psoriatic arthritis, damaged kidneys, nerve damage, ruptured muscles, slipped discs, the time I had pre-cancerous cells and how every doctor’s appointment made me feel a little bit more broken than the last.

And then I thought about me.

I thought about how the child in me only ever wanted to be loved. I only ever wanted to mean something, to be valued. I thought about how I became such an over-achiever because I thought it would get me the attention I deserved, only to be crushed when I was told I was never good enough. I thought about how the adult me is always overly-eager to help others, to be there for everyone in the hope that they not just value my presence but will be there for me in return. I thought about how I hate to consider myself needy but I admittedly crave attention, I need affirmation that I am worth something.

That I’m not worthless and there is value to who I am.

It’s easy to see why I blamed everything on being ‘overweight’. Why I convinced myself that everything would be better if I lost weight and why it gave me control over my chaotic life that was spiraling every day.

It then became easier to blame myself even less for becoming bulimic after I wrote everything down. I blame myself even less now that I’m writing it down here.

I know I had gotten myself worked up all week but I was feeling incredibly rubbish, took some time to work through a chapter in this book and realised everything was okay. It was okay to miss a night out because I wasn’t up for it. It didn’t mean I was weak. It meant I was ill at that moment in time, too ill to go out. If I had the flu, I wouldn’t have gone, so there I was not weak when I took myself out of a triggering situation, to go do some self-therapy and work through it.

I don’t need to deny that I’m ill nor do I need to justify the way my illness makes me feel. It’s okay if you’re sad one day and smiling the next. Every now and then, it’s okay to not be okay.

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Number Crunching

I did that thing I wasn’t supposed to do.

I did it even though I knew it wasn’t going to do me any good.

I stepped on the scales and that pain I knew would arrive came rushing, burning through every part of my body.

I stood there, simply hurting.

8 weeks into recovery and I had gained some weight.

I could see it coming, I knew I had. I knew I felt bloated and bigger around my midriff. I mean, I’d spent hours criticising the way I looked before I even stepped onto the scales.

I ignored the fact I was now exercising 4-5 times a week. I forgot that it was the end of the day and I had been eating 3 meals a day like clockwork. I refused to accept I was wearing trainers and clothes when I took that fatal step onto the scales.

And boy, am I struggling with this weight gain?

I’m trying to reassure myself that 4 llb’s isn’t that bad but the Demon inside tells me it is. I’ve spent countless hours crying to my boyfriend because the need to restrict and the desire to purge have been at their loudest for the past 12 days.

It makes me feel embarrassed to need so much help lately.

I’m suffering from this constant fear that they’re all going to leave me.

Most of all, it hurts. Everything simply hurts and there’s no actual medication I can take that will numb the pain.

Going round in circles. Can’t face looking at my reflection but simultaneously can’t stop looking at my ‘imperfections’. Don’t want to eat my meals but fighting to make sure that I do.

At least I’m still fighting.

I’ve just spent the weekend in Manchester with my best friend. A trip we planned a while ago and if I hadn’t paid for my ticket, I may have given into the ED telling me to bail.

We did nothing. A few walks, a few movies and lots of cups of tea. But it was perfect and, as it turns out, just what I needed.

I needed nothing.

I needed time away from my place where, unfortunately, bad memories already exist.

I needed time to stop and breathe and think.

Time to just do nothing.

I feel better for it.

I’m trying to take some time to understand that just because I’ve gained weight, it doesn’t mean I’m fat. Just because the number has increased doesn’t mean I’m unworthy.

In fact, I’ve started to feel more ‘worthy’ than ever before.

And between you and me, I have learnt an incredible amount these last 8 weeks.

I’ve been using a compassionate mind work book, I’ve had 8 weeks of balanced meal plans and healthy exercise. I’ve had a few purges and hardly any binges and I’ve hardly skipped any meals.

It hurts and I constantly feel drained.

But I’m happier.

And whether or not I’ve gained 1-4 pounds…I’m definitely healthier.

And I’m sure that, one day, being skinny will not correlate to being ‘healthy’ but that, maybe those extra couple of pounds will.

Nothing like a train ride to dedicate some time to getting negative thoughts away from me ❤️

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Just say this or that

I slipped up and he told me he was ‘frustrated’.

Since admitting my relapse the other week I’ve pretty much put every practical step into motion that you can think of.

I moved into his for the week so I could have that really close support (supervision too). We sat and made a meal plan, did the food shop and helped me prepare what I needed to. We made food choices based off healthy levels of exercise throughout the week. Spoke to my therapist and even someone at work. New food diary, new journal and off to a new me(!).

But I slipped up.

I tried so hard to battle that Demon’s voice and I lost.

I had one slice of pizza and I couldn’t even cope with that.

I felt forced to eat it, pretty much. Everyone else was. It was leftovers from our department pizza party last night (a party I couldn’t stay at for more than an hour because socialising around the alcohol and pizza physically scared me).

I told myself say no. I ordered myself to refuse.

Some may tell me that it’s as simple as that.

‘You don’t have to eat it. You can say no.’

Saying no is hard though.

Why couldn’t I have said no?

A slice of pizza wasn’t on your meal plan. You’re weak for saying yes. You’re weak for diverting from the plan. You should be ashamed. You’re going to gain so much weight.

All these thoughts running through my head seconds after I finished.

I felt dissociated from my body after that. And all of a sudden it was ‘done’.

I promised to text him if I ever purged and so I did. But my text made him sad and ‘frustrated’. I don’t ever expect him to condone a purge and he refuses to say the words ‘its okay’ to get that across. But sometimes I just need that. I just need to hear the words ‘its okay, we’re going to get through it.’

I’m tired of not being okay. Tired of being up and down with this illness. I was doing quite well and I’m so disappointed I couldn’t keep it going. I’m more disappointed that I’ve made someone I care about incredibly sad.

Shaking these feelings of shame and disgust is tough. I always knew it would be.

I wish I could have said no to the slice but I’ve also been on that awful side of the spectrum where I said no to everything. Where saying yes was the hardest word to get out of my mouth.

Trying to find that balance and trust that it’s ‘safe’ to do so.

Trying to trust myself more than anything, I suppose.

 

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Back to Basics

 

Apologies as there may be some triggering thoughts here.

So, I thought I was doing okay and there were times I thought I was fine. Or at least the ‘Demon’ told me I was okay. Convinced me I didn’t need help. That there wasn’t an issue because what I was doing was keeping me ‘slim’.

Well you know what, what I was doing also made me sad. It also made me cry at my best friend’s birthday party because it made me so scared to be around food, drink and others. It made me angry at myself for not losing weight and it made me so incredibly insecure that my boyfriend would leave me if he found out.

I started to notice the ‘tricks’ coming back into play. Double/triple-checking that my housemates most definitely were not going to be home that evening. Going to toilets on floors at work that I knew nobody went to. That bag that sat in my wardrobe waiting for me to sneak it to the bins outside. Telling friends I had already eaten or would be eating later when I’d already planned to skip those meals.

And nobody really knew.

That in itself made it easier but deep down I almost ached for someone to ask. For that one person to see behind my smile and recognise that I was not okay. I was generally happy but I was in so much pain over what I was yet again doing to my body.

And then it happened. I hit rock bottom just as hard as previous relapses and I picked up the phone. I sat in the corner of my room, I suppose it felt safe, and I text my boyfriend and said point blank I needed him. That I needed to go round and I needed him to help me eat and to help me ‘keep it down’.

I was so scared he would leave or refuse just like others in the past. I was simultaneously scared that he would be upset with me or that I would hurt him by admitting what horrible cycle I’d fallen into once. I felt weak. Like a let-down. A failure.

Damaged.

That’s how I felt.

Damaged goods yet again at rock bottom.

My therapist leaving London last year hit me hard. I had seen him for four years and whilst I was in a really good place the thoughts of having to see someone else and start this process yet again scared the crap out of me and so when I needed help I didn’t feel like I could arrange to go see someone new. To open up about my not-so-great life once more.

But I told my boyfriend and my friends what I needed. For the first time in our relationship I didn’t wish he would offer what I needed…I simply asked. I asked to live with him for the next week or so because I felt I needed supervision. I asked him to sit down and help me plan my meals for the week and to ensure I stick to them regardless of if I tell him ‘I’m okay to change X and happy to eat Y instead.’ I asked him to help me send an email to my old therapist to ask for advice (which was the hardest step of all) and I asked him to come along to dinner with my parents in case I couldn’t handle it on my own. I asked him to help distract me when those thoughts about purging came running.

And he did.

I was upset that he cancelled seeing his friends because I felt that made me a burden but deep down it meant so much to me to know he cared that much.

And I literally told him everything.

I told him every thought that plagued my mind before and after each meal. I told him when I was scared to eat and when I wanted to be sick. I told him every perception I had of myself throughout the day. I told him every negative thought that crossed my mind and I told him of ‘tricks’ that I was ashamed of. I told him of some of my darkest periods of this illness and he just listened.

He didn’t judge, he didn’t comment, he just listened. And I told him that was exactly what I needed.

That’s all I ever need because, in a way, it simply helps me identify what is going wrong and decide what is going to help.

So we went and planned my meals and some gym sessions. He held my hand in the supermarket and he held my hand whilst I ate. We sent those emails and we spoke about the physical implications of this illness – what worries him the most…and whilst that wasn’t a fun conversation…it helped. Each time I ‘panic’ I try to think about the following:

  • I don’t want to have a heart attack due to the stress I’m placing on my body.
  • I don’t want to further damage my liver or kidneys.
  • I don’t want to become infertile.

Each time is ‘the last time’ and each time is one step closer to being that actual last time.

Sometimes the rigid planning makes me feel weak. I criticise myself for not being ‘normal’ and not being able to ‘do this on my own’. But I think I’ve finally after all this time admitted that the practical steps are things I am going to have to apply for the rest of my life. It’s not about needing them because I’m ill but rather that it’s a way of leading a healthy lifestyle.

So here I am, day five. Almost made it to a week since my last relapse.

 

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Today

I hate days like today.

The days where I hate every reflection of myself that I glimpse. The days where I have this uncomfortable feeling of disgust about myself and my image.

I hate these days where I become so scared, yet again, that I’m never going to be ‘perfect’. These days where my biggest fear is looking ‘fat’ this weekend.

I hate having days where the Demon plagues my thoughts with negativity. Days where I feel like I’m being swallowed whole.

Questioning every decision to eat, every exercise that doesn’t seem to shift any weight. Constantly questioning when, if ever, I’m going to feel good enough.

It screams at me that I’m huge and ugly. That I’m weak and disgusting. And the worst of it is, I appreciate these words aren’t true, that I am actually worth more than I think I am but that, in turn, makes me feel ashamed and embarrassed that I even have this illness in the first place.

I have these days where I do just fine, great in fact but I really hate that days like today seem to eradicate any progress I make.

Any step I took forward seems forgotten, lost in that dark space that swallows me whole.

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Near-Exhaustion

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The pain cuts deep. It stings and it burns and I simply can’t hold back the tears that fall. Taken back to hospital just when I thought I was okay. Just like always, the hope comes crashing down, once relaxed but back on guard.

Always seem to be falling. Always dragged backwards against my will. Weighed down, feeling like I could drown.

It hurts more than the pain that has brought me back to hospital.

It hurts more than the pain I felt from June 18.

It aches and it hurts.

The word that there is something else wrong with me.

Another diagnosis, another condition, another something or other wrong with me.

Another broken piece.

When I feel ‘fixed’ I get broken again.

Whether it’s by family, friends, boys or myself…just constantly being broken.

And I am so tired. I’m exhausted.

‘Damaged Goods’ – that’s what I am and you can tell me I’m not but it won’t change how I feel right now.

Taken to surgery, kidney fixed. Endless list of medication for the time being and review booked in. It wasn’t even too serious; I’ll be better by the end of the month. But a month off work, a few weeks away from my best friend…it’s hard not to feel broken and lonely when that’s all that you can relate to.

I wasn’t able to eat – the illness took care of that. I didn’t have an appetite for 3 weeks and if I ate, my body couldn’t keep it down. Such a triggering situation and I’m working to keep it away. To not relapse over those feelings of ’empty’, the feelings I used to crave.

They said it’s likely to happen again but there’s not much I can do. Just drink excessive amounts of water and they’ll monitor the rest. Just when I was getting a grip on so many things, getting so much happier in myself, just something else. Always something else.

Dragging me back to reality.

My reality that I’ll never be normal. That I’ll always be a burden to those who have to help me. That I’ll always be ill, disabled…used…abused…broken or worse.

Wouldn’t it be nice to eat and drink without fear? To not have the nightmares? To not be rushed to hospital at 4am? To not have to have emergency surgery?

Give me a week and I’ll know it’s not true. I’ll realise I’m tough for dealing with all my crap. I’ll smile because I’ll be proud of every step I’ve had to take in my pretty shitty life.

I know what I’m like…I’ll feel awesome in no time.

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