Near-Exhaustion

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The pain cuts deep. It stings and it burns and I simply can’t hold back the tears that fall. Taken back to hospital just when I thought I was okay. Just like always, the hope comes crashing down, once relaxed but back on guard.

Always seem to be falling. Always dragged backwards against my will. Weighed down, feeling like I could drown.

It hurts more than the pain that has brought me back to hospital.

It hurts more than the pain I felt from June 18.

It aches and it hurts.

The word that there is something else wrong with me.

Another diagnosis, another condition, another something or other wrong with me.

Another broken piece.

When I feel ‘fixed’ I get broken again.

Whether it’s by family, friends, boys or myself…just constantly being broken.

And I am so tired. I’m exhausted.

‘Damaged Goods’ – that’s what I am and you can tell me I’m not but it won’t change how I feel right now.

Taken to surgery, kidney fixed. Endless list of medication for the time being and review booked in. It wasn’t even too serious; I’ll be better by the end of the month. But a month off work, a few weeks away from my best friend…it’s hard not to feel broken and lonely when that’s all that you can relate to.

I wasn’t able to eat – the illness took care of that. I didn’t have an appetite for 3 weeks and if I ate, my body couldn’t keep it down. Such a triggering situation and I’m working to keep it away. To not relapse over those feelings of ’empty’, the feelings I used to crave.

They said it’s likely to happen again but there’s not much I can do. Just drink excessive amounts of water and they’ll monitor the rest. Just when I was getting a grip on so many things, getting so much happier in myself, just something else. Always something else.

Dragging me back to reality.

My reality that I’ll never be normal. That I’ll always be a burden to those who have to help me. That I’ll always be ill, disabled…used…abused…broken or worse.

Wouldn’t it be nice to eat and drink without fear? To not have the nightmares? To not be rushed to hospital at 4am? To not have to have emergency surgery?

Give me a week and I’ll know it’s not true. I’ll realise I’m tough for dealing with all my crap. I’ll smile because I’ll be proud of every step I’ve had to take in my pretty shitty life.

I know what I’m like…I’ll feel awesome in no time.

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Twitter: @elenip92
Instagram: @elenipapa92

Times Like This

Woken up 4am Thursday morning with a pain in my left hand side. A stabbing pain that made me scream and cry and call out for my flatmates.

8 hours later and the hospital sent me home. Hand in hand with some paracetamol, they couldn’t work out what had happened to me and said I remained a ‘mystery’. Forever a mystery, even a friend commented that I am ‘always in hospital’. Times like this make me feel numb, never knowing what’s wrong other than that there is always something wrong with me. Times like this make me feel broken.

5am Friday morning and the pain was back. So was the hospital and the doctors claiming there was nothing wrong with me. I cried. My boyfriend was there to hold my hand this time and he held it tight as I cried. All of the pain, all the exhaustion and all the stress of being told I was ‘fine’. I’m always fine…

They sent me home with codeine this time and it seemed to do the trick but on Friday the pain never left and neither did he. He stayed the day and rang the doctor who told us to go back on the evening. And so we did. He held me tight and he took me back. He held me when the pain came back and he wiped away every tear. He held my hand whilst they did all their tests and he really helped that fear. He calmed me down. Though I could tell he was panicking, he knew what I needed and he stroked my hair, held me again trying to help me sleep.

Saturday morning, 2am, and the doctors had found me a bed but he wasn’t allowed to stay. That was the first time the fear came back and each time the pain woke me up I felt more scared, more lonely. Counting down the hours minutes and seconds until 2pm so that he could come back and hold me.

On regular morphine now, they ran more tests and eventually found the cause. Inflammation and water on my kidneys along with this teeny tiny 3mm stone. So again, but with an appointment for a specialist next week, they sent me home.

I didn’t expect him to stay. 3 days of hospital was surely enough but he spent Sunday evening with me. Helping me with every little thing. The smallest things that mean the most. I could tell he was worried but together we got through it. He kept me distracted when I needed it the most and he held me when the pain made me cry all over again. He set alarms on his phone to make sure I had medication at 12am, 4am and 8am. He even worked from home at my flat on Monday just to keep an eye.

Times like that make me realise just how much he cares. I’ve always known it, always sure of it but times like this make me feel loved. Spend so much time feeling worthless and unloved and times like that make me feel so wrong. Telling me he ‘wanted his Len back’ made me realise how much he really does. How much he wants me to get better in all aspects . Feeling cared for, loved. All I could want but it means so much more than it did before.

Right where I needed him when I needed him and yet he went above and beyond what I could have ever expected.

Times like this make me want to get better with my ED. What if that ‘one last purge’ made me this ill? It’s been a while but kidney damage can be caused by bulimia so what if…almost not worth thinking about but it is additional motivation.

Times like this, thanks to the illness but mainly thanks to him, make me want to become even healthier.

 

A Badge That Says ‘I’m Different’.


I was given this badge. This nice blue badge which, now that I mention it out loud, is appropriately coloured. On this lil blue badge is the London Underground sign with a phrase stating: ‘Please Offer Me a Seat’.

I was born looking normal, I grew up looking normal (well to the extent I hid my arm) and I definitely still look normal. No body can see the pain I’m in. Friends wouldn’t really know the extent of the pain I’m in on a daily basis.

Why? Because I don’t want to be that one who complains all the time and nor do I want to feel like a burden to anyone. So I smile and get on with my pain treating it as and when I need to.

I wish that method could apply to my mental pain, but I digress.

Standing up on a packed tube where I’m too small to reach any poles to steady myself is painful. All my effort goes into trying to balance and it hurts. My leg is throbbing from morning all the way through til that tube journey home.

And so I was given a badge. In the hope that people wouldn’t question my invisible disabilities and allow me to sit.

And most of the time they do. The rest of the time, I’m probably way too small for people to even notice me in the first place and that’s fine. What’s also fine, is those who don’t give up their seats because they could be like me.

It hurt me though, when I got it. I felt like I was given this great big blue badge that screamed ‘I’m disabled!!!’. I felt ashamed that people would look and question what could possibly be wrong with me that warrants me having such a badge.

I felt broken.

It represented this huge feeling of being broken. Of having something wrong with me. Of not being normal.

It reminded me of those feelings of shame for having physical issues growing up. The feelings of hurt when no one would believe I was couldn’t do things or was in pain. The memories of being bullied for being different.

I still get embarrassed. I see people staring but I know they’re going to. One person was cruel but that was one in god knows how many hundreds I’ve come across on my tube journeys this past month.

But being able to get a seat for most of my journey has really helped reduce the pain I get in my leg. Just like writing helps reduce the pain in my head and heart.

It’s nice to feel less pain in my legs.

It’s nice to be writing again.

I can’t believe it’s been so long since I last wrote anything and it was an unexpected message that actually got me wanting to write again.  It’s not been plain sailing since then but I’m sure I’ll start telling you all everything that’s happened soon enough!!

Thank you for that message ❤

Instagram: @elenipapa92
Twitter: @elenip92

 

 

 

‘Full of Joy’


I haven’t written for almost a month, in fact, I think it’s been almost exactly a month since I last wrote. Most of the times when I go silent it means something’s up, something I’m not quite ready to tackle head on but I’m pleased to say this time it’s quite the opposite.

To the north of mainland Greece there’s a teeny tiny island called ‘Skiathos’ and it is by far my favourite. I first came here when they told me I was too fat to represent my country at a Paralympic Games and whilst I arrived all doom and gloom I definitely left, yet again, quite the opposite.

So where else would I head to when I had about a month to myself? Where else would I go where my friends are more like family than my own? So yes, you guessed it, here I am in my favourite place in the entire world. 24 days down, 2 to go. 

I thought I’d get bored or lonely at least once because just under four weeks is a long time. But fact of the matter is, I simply haven’t and I’ve loved every single minute. I’ve been meaning to write but I’ve just been so distracted with sun, sea and my family that I wish was my own. The only reason I’ve finally managed to sit down and type something out is because it’s stormy and windy today that I don’t really have any other option!

The first weeks were tough. I couldn’t help but compare myself to everyone else I saw around me. How flat I perceived their stomachs to be. How I perceived myself in comparison. I restricted and I purged but I also did get it under control. 12 weeks…2 episodes of purging. I tried to deal with it healthily and I will admit I struggled but being around old friends and adoptive family filled me with so much joy – there’s a phrase Greeks use in response to the question, ‘How are you?’ – mi hara – ‘full of joy’ and I think that in itself is a beautiful response. 

One day I woke up insanely happy, I felt some sort of spring in my step and I even later in the day cried over text to my bestest. I simply felt happy. I’ve tried to change how I word things – I would say ‘everyone is so much skinnier than me’ and today I noticed I wrote ‘how I perceived…’ . Trying to develop my awareness of my eating disorder symptoms. I used to write I missed who I used to be before my ED and during this trip I realised I should never have focused on becoming a past version of myself because, simply put, we all change. And, yes, I’ve experienced some horrible things but that doesn’t mean I won’t become the best version of myself as a result.

I told him I loved him. The three words slipped out after weeks of me trying to hold them back. I knew I wouldn’t hear them said to me and that was okay but naturally not the greatest feeling. It got to me a bit but now? I’m completely different. I knew I wouldn’t hear them but I still wanted to say how I felt. I didn’t need to hear them back regardless of how much I want to hear them one day. I was brave enough to put my heart on the line because I cared about being honest with my feelings – for myself as much as for him.

Working really hard to separate my inecurities from reality. 

Don’t get me wrong, it’s a scary sorta limbo. I know we’re pretty awesome and the fact he’s made a noticeable effort to text more as I’m more of a ‘communicator’ so to speak, the dedicated weekly face time slot and the simple fact that if I need him, really need him, he’s there…and yeah, we’re pretty awesome together…there’s no need to worry. I don’t want to reach that stage where I may have to deal with a guy who decides he’s never gonna love me but I can’t live in fear of something that’s only got a 50% chance of occurring. I’d probably self-sabotage it all that way anyway.

He does say something to me though – ‘I like you an absolute lot’ 

I think I like that more than ‘I love you’ 

Bit like how I prefer the Greek saying of ‘I’m full of joy’ rather than ‘I’m good/fine/okay’ because when I say the latter, some of it is a lie…but I’m always full of joy so to speak as I’m one of those people who finds happiness in the simplest of things, always happy even if I’m not okay with my body shape or my perception of myself.

Maybe I’ll start focusing on trying to be full of joy. Focused on the little things that bring me happiness rather than the things that make me feel okay about myself…

This is what my ED looks like

An llness that doesn’t care for age, height, gender or (rather ironically) weight.

My ED carries a smile. A smile that whispers to the world ‘I’m fine’. A smile that begs for someone to ask ‘what’s wrong?’ but knows that if anyone does, it’ll crack.

My ED walks with a head held high. One that’s determined not to fall. Held tall all day throughout the storm, pushing to make it through. But the storm just grows. Cruel voices that start out small but grow so loud. 

My ED stands on shaky ground. Legs struggle with the weight. They walk with pride but before the mirror the ground always quakes. 

My ED has hands that grip the sides of the bathroom sink or lean on the kitchen table. Everything tense, trying to pull me high. 

My ED has eyes that are tired of the tears that fall regardless of their source. Eyes so blurry once again, yet again, salty stings running down each cheek.

My ED hasn’t managed to make me purge for four weeks and it’s barely skipped a meal. My ED has only gotten the scales out once but the war rages ever on. The voice tells me it’s because I’m surrounded by people, that I would never have done this on my own. The longing for the scales is only stopped due to a fear of the number being ‘too high’.  My ED still hates the mirror and the hands still grip the sink. The legs still struggle to reach the fridge and the tears forever fall.

Forever falling. 

But my ED isn’t necessarily me. It’s a huge part and that I will never deny but it isn’t me as a whole. 4 weeks and I’ve made it through, kinda, almost, but still, 4 weeks, that much is true. I’ve not been alone but that doesn’t necessarily mean ‘I’m weak’

They see me eat and so they don’t think to ask because my ED carries a smile, the one that says that ‘I’m alright’.

The cruelest trick of all, because inside, I’m most definitely not alright. 

Raindrops



The rain was so heavy last night. It just endlessly poured and poured. It drenched me through, past skin and bones but I wasn’t ready to go home.

The voice at the other end of the phone cracked a feeble excuse of ‘hello’. I could hear her tears begin to fall before I could say my own ‘hello’.

Crying over the man she has to go home to. Crying over the situation she says didn’t want. Whilst she can’t control his actions she chose to remain and so off to home, she goes.

I needed strength from someone that wasn’t me. Support for the two feet I could barely stand on. So I leant with my back to a broken fence trying to stay tall. I tried to find that strength within but my own tears began to fall.

And the rain kept pouring. It poured and poured. It was never going to stop.

It…this…all of it. It’s never going to stop.

Every tear that falls, makes me take irrelevant things to heart. But although I know it’s different, the scars I have convince me that more are due to start.

They say I’m strong but I’ve never felt so weak and last night I just wanted some arms. To wrap around and hold me close and take away this storm.

This storm that gets so strong, it knocks me to my knees. Why can’t they see what they do to me…what they’ve done to me…

They don’t see the scars they’ve dug so deep.

My head pounds with contradictions and distortions: present, future, past. Pick them up and I carry them all, the ground cracks beneath my feet.

The rain almost started to soothe me. As if the world could feel my pain. Not alone, never have been. With my heart calmer and one deep breath I brought myself to my feet.

In that moment, I had no greater need than the FaceTime call that came barely 30 minutes later. Her face and mine connected on a screen but that’s all I ever need.

The tears came strong but so did laughter and crippling tears of joy. Get to see her in two days’ time, to celebrate all weekend long.

This post has hurt so much to write. Sat with tears burning down my cheeks. God knows what they think, the people who can see.

I’ve never been so happy either, with him, with her, with me. They say you can’t pick your family but I choose to disagree.

Instagram: @elenipapa92
Twitter: @elenip92

Hello

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I have a weekly face time catch up with a best friend of mine. A best friend I’ve actually only known two years, a best friend who’s been a best friend possibly less than a year but, regardless, the best of the best. 

Doesn’t matter how long you’ve known someone, all that matters is that they’re there.

But when you realise they are there, even when you didn’t expect it because you hadn’t asked them to be…that’s when you know just how special they are.

I cancelled last weeks’ FaceTime because I was incredibly stressed out for reasons discussed previously and also on that day Dad decided to visit.

I half-reluctantly met him and it was perfectly pleasant but I’m purely going through the motions now (I’m so fed up with him and would be happier without a connection…but mum begs me to stay in touch). 

Anyway, a perfectly pleasant lunch ends with him saying its time I met my half-sibling. He spoke about him so casually throughout lunch, ‘oh Jason has exams soon…oh Jason’s doing this that and the other’ and it’s weird to hear my dad talk oh so normally about a half sibling he surprised us all with a few years ago. The half-sibling he dotes on so much more than he ever did me. One of the reasons I had to pick my mum up all those years ago, one of the reasons there’s no money left and mum can’t pay her bills. I wasn’t even 7 years old when dad started the affair, barely 15 when the kid came along and just 19 when I found photographs and letters and skype messages telling the truth. So much hurt from a man that never cared and yet mum asks me to ‘be nice because he’s still your father and he’s so stressed out.’

Oh yeah, let me just put the man who hurt me over the years, who hurt all of us, first. Let me put him first simply because he has the title of father when all he is in reality, is a glorified sperm donor.

I broke down when I got home after lunch – my head was all over – food was too much to contemplate and I hadn’t been sleeping due to nightmares and I simply didn’t want to be alone so I went to his house to spend the night. I text her apologising for cancelling with no other explanation other than ‘I’m really stressed out’ and she completely understood because great friends always understand. 

But you know what an even better friend does?

This…

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I got this through the post on Monday and I cried. It took me completely by surprise and I cried. I sat on the kitchen floor and cried. I cried because I was slowly realising how much support I have. I’ve never doubted her support but this simply just got me. It went straight to my heart and seemed to release all that pain.

I hadn’t even told her any of the reasons why I cancelled because I’d been so busy the entire week. But that’s the thing. She didn’t need to know the ins and outs to be able to help me. She just knew something was up and that small postcard contained more support than you can even begin to imagine. A small postcard that has pride of place on my bedroom wall. A new daily reminder I can get through all this. A daily reminder that there are people there even when I don’t expect them to be.
Especially when they realise I need them before I do.
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Instagram: @elenipapa92
Twitter: @elenip92