Out of sync

I decided to stay in Cape Verde for the week instead of going home early. I wrote a nice big list of pros and cons (don’t we love those) for staying or going home and, ultimately, I realised I wouldn’t necessarily be much happier at home and I’d still be doing very little so if I’m not going to do much I may as well not do much in the sun!

Truth be told, I realised my ED has been triggered the past month because I have been feeling insecure and vulnerable in my relationship. I am still purge free but when I say my ED has been triggered, I mean those leftover voices and urges that crop up.

It’s funny. I know my relationship is great. I know my boyfriend is wonderful and I do know that he loves me but I’ve felt a little lost the past month to 6 weeks. Kept blaming it on the new house and the adulting stress that naturally comes with that. It took me getting on a plane on Saturday morning to realise how low I was feeling towards my relationship.

That in itself felt confusing because I simultaneously knew how much we love each other and how great we are together so why could I possibly be sad?

Occasionally I’ve felt he doesn’t love me quite the same way as I love him. I’m more proactive and giving in a relationship. I like that, it’s part of my personality but it’s also a flaw because it makes me vulnerable to thinking they don’t care as much as I do when that could be completely wrong.

I’ve done the most of the house planning and organising. I sorted the mortgage, legal docs and negotiations. I’m the one who researches and makes suggestions about rooms and furnishings (more often than not to be met with a “no” yet no alternative solutions offered. I’m the one who rearranges my work days (even when I really shouldn’t) to deal with deliveries and builders. I’m the one who deals with all those phone calls and emails relating to all that. Which is fine, I promise…again, I naturally default to being the organiser…but it would be nice for a little more action on my partners half rather than me feeling like I’m always chasing and him not wanting me to…

Sex has dropped too. Dare I say it, I think good sex is super important to a great relationship. I know some might disagree and say I’m wrong to emphasise good sex but honestly, the way I see it, happy relationship = better sex = happier relationship = even better sex = happy relationship…

Obviously that’s not always true. I know that. But for me, I do feel the happier I am with my boyfriend the more I can connect with him during sex and that then makes me happier.

He’s lost some of his romantic edge too. No flowers on our anniversary this year or valentines and he didn’t even post anything about our anniversary which took me by surprise. It sounds lame to want a social media post but here’s the thing. He doesn’t post much about us, I get that. I’m not a massive social media PDA-er either but he’s always done this nice short and sweet loving post about me on our anniversary so that’s my one day he tells everyone how much he loves me and I know I won’t get it the rest of the year but I know I’ll get it that one day..except this year.

We don’t hang out as much as I thought we would either. I knew it wouldn’t be like the weekends we used to spend together but with my long hours and needing early nights and him wanting to practice his cello and play games at night there’s such limited time in between me coming home and going to sleep. He doesn’t see the need to dedicate that one hour I have to each other but I do. I see it as “okay, I’m home and I’ll be asleep in 60 mins so let’s watch TV, chat a bit and then once I’m asleep you can do whatever it is you want to do…just give me 45-60 minutes of your time.”

He’s the opposite. He doesn’t feel negative if we don’t see each other at all in an evening. I do. He’s more introverted than me…but I like my alone time too! Finding the balance is hard. Trying to sync ourselves into a routine that isn’t routine but feels natural. Knowing when I may need more attention and when he may need more space. It sounds so silly to me sometimes because honestly living together has been wonderful and I love it.

I really do.

Just the lack of productiveness towards our joint investment and new home, decrease of sex and romantic affection has left me feeling a little unloved, a little unwanted, and I’m turn, a little worthless. Unloved, unwanted and worthless…the three major emotions I’ve experienced throughout my life that culminated in my ED.

It makes me sad to feel as though he doesn’t love me as hard as I love him.

I cried and told him all of this on Sunday. He was very supportive and it felt like a huge weight of my chest. He agreed that we should work on syncing up our sex lives and acknowledged he hasn’t been as affectionate as he could have been lately. He’s making more effort on the house front too. He tried to reassure me that he does love me and he’s just a bit introverted with his evening activities – something that’s harder to see when before you lived together, you only hung out on a sat night and Sunday so you naturally dedicate all that time to one another.

Adulting, eh? Bloody hard work but I’m sure it’s all worth it.

Flexible Planning

T-minus 24 hours until my qualification leave begins! (Well 24 hours if I leave work at 5pm tomorrow but my supervisor knows it’s my last day so fingers crossed he’ll let me run away as soon as it is professionally acceptable to do so).

It still hasn’t fully hit me that I’m going to be away and out of the country for 6 weeks from Saturday morning but I’m so incredibly excited.

There’s one pesky issue though…my ED.

Although I consider myself in “recovery”, the Demon doesn’t want me to enjoy my holiday. It wants me to avoid putting on weight, to limit my carbs so I don’t look as chubby on the beach and to exercise more than I should on holiday….

I’m used to doing weekly food plans – something that has thoroughly helped my recovery – but the idea of having an unpredictable and unplannable 6 weeks of eating has shook me more than a little. However, my first 3 weeks in California will be very active. The days will be full of hiking, swimming, walking, kayaking etc so I know I need to ensure I fuel my body for those activities.

But I don’t know what I’ll be eating. I don’t know where the supermarkets are or the restaurants around me and nor do I want to obsessively research that in advance but I can’t fully let go of my food planning for 6 weeks and so I came up with a more flexible way of planning.

I’ve made an itinerary for California and on the days I’m going to be super active I’ve noted in nice green writing: “very active day: higher calorie intake needed”. I toyed with the idea of writing “lower calorie intake needed” on my purely travel days (and initially I did) but I realised that could be triggering if my ED brain considers that a “rule” and then panics if I eat a bit more than anticipated.

I’ve not gone into any more detail than that and I think that’s fine. It’s not a solid food plan by any means but it allows me to recognise when I need more fuel and days where I need to prepare food for a full day’s hike the day before.

I’m far more concerned about visiting Greece with my boyfriend as I’m worried we’ll eat out and drink more on a less active holiday but we came up with a plan for that too. We’re going to rotate each night with a visit to a restaurant on one night and a gyros/cafe on the other. Also, every second restaurant visit will be one I can “splurge” at a little – a cheat meal so to speak.

(It’s been hard to re-educate my brain that eating at a restaurant doesn’t automatically mean over eating or eating unhealthily)

I’m hopeful that, in that way, I can keep one restaurant meal healthy and allow myself to enjoy holiday food a bit more on the other with much smaller gyros type meals on the other days (which are incredibly filling and only €2!)

Greece is the tough one. I’m panicking a lot about that part of the holiday because I’ve also put pressure on myself to not have ED problems as I’m concerned about them “ruining” my boyfriend’s first holiday with be and let’s be honest, I’ve not had a symptom free holiday since my ED began so 8 years plus….

But I’ve also never had a holiday with my ED where I have created a flexible eating plan…so maybe this could be a good coping mechanism going forward.

I guess there’s only one way to find out…but to begin with, here’s to me finally about to qualify as a solicitor!

Stuck in a rut

“But you’re fine” that’s what they say.

That’s what they always tell you.

But I don’t feel fine.

“So what if you’ve gained weight, you’re fine”

That’s how they continue.

But I don’t think “so what?”

I see more writing in my food diary, the increased number on the scale, an unhappy girl in the mirror looking at me.

I am that unhappy girl.

I’m trying to ignore the numbers and the thoughts but I’ve, simply put, struggled this week. I’m in a bit of a rut and I’m not sure how I can get out of it.

Hidden

You say you don’t like to tell me you love me too often, so that when you do, it means ‘more’.

Those hidden words would mean a lot to me, if I were to hear them a little more often.

You say I’m perfect the way I am but I feel as though you keep me hidden.

You’re not hidden in my life. You are happy to be a part of my world.

You’ll come to events that my friends or I host.

But I’m never invited to yours.

19 months and I haven’t met a single person.

No work colleagues.

No friends you take part in your hobbies with.

Only your housemate but, I’m sorry, that doesn’t count.

I’m in your profile picture but you never post any other pictures of the adventures we get up to.

Yet you do with everyone else.

Family, colleagues, friends.

Just not me.

You always look so happy too. You never look that happy in any pictures I take.

Maybe I’m reading too much into it.

Maybe you’re making me feel ashamed of myself for no real reason. I know you would never mean to.

But I’ve been kept hidden before. I’ve been plenty of peoples ‘dirty little secret’. 

I’ve told you I feel hidden and yet nothing has changed.

God, how much just one introduction would mean to me.

But for now, I’m kept hidden.

 

 

Just a touch of magic…

It is impossible to visit Disneyland and not feel happiness. I challenge you to find someone who has entered one of the parks and not enjoyed it one bit…but even if you do find someone,or you are in fact someone who doesn’t like Disneyland, then that’s perfectly acceptable.

Each to their own!

My boyfriend and I went to Paris for my birthday last weekend and before you jump to the same conclusion as all my friends of OMG that’s like soooo romantic…it genuinely wasn’t intended to be some overly-romantic-whisk-me-away-trip.

We’d actually planned it far in advance but that in itself didn’t take any of the magic away.

We decided to spend my actual birthday at Disneyland itself and I knew from the moment we settled on this that I was going to have a lot of fun. However, in hindsight, I totally underestimated just how much fun I would have.

I was in such an incredibly happy place both literally and metaphorically, that I had so much fun I actually forgot it was my birthday. In fact, I didn’t even get my presents until a whole two days later because we totally forgot. But that’s by the by because I simply had a great day.

There was one thing I noticed, however, which was that for the first birthday in what feels like forever, I don’t think I panicked.

I didn’t overthink each of my three meals, I didn’t panic because we hadn’t planned them either. I didn’t try to calculate my calories or what I therefore needed to burn off. I didn’t try to justify why I either did or did not want a certain piece of food.

Most importantly, I didn’t criticise myself once. I didn’t even whisper to myself that I was fat.

That really is such a nasty sounding word.

I was simply so happy and having such a wonderful time with my other half on our first trip away together that the dark parts of my mind were silent.

That’s the best way I can describe it – they were silent.

I’m not going to pretend they were silent on the other days of our trip, because they most definitely weren’t, but it’s relieving that they are becoming lighter and quieter in their nature.

I’ve decided I’m going back to therapy to address these final dark thoughts. To tackle the last little parts I’m struggling with the most because I still have some battles to go through. That in itself was an incredibly tough decision because I feel as though I am sort of fine.

But I don’t want to be sort of fine. I want to be healthy and perhaps that does require a little bit of professional guidance.

The fact my ED was silent on that one day means it can be silent on other days too. Whilst it’s not silent right now, I’ve decided to just enjoy the fact that, for that single day, it actually was.

Instagram: @umbrella_adventures_

Restless Rest

I had a week off work last week for no reason other than I had holiday to use and figured that back in March, a random week off in June would work well.

I struggled that week more than I ever thought I would. Between all the hospital appointments I had scheduled and the inevitable ‘house hunt’ starting I struggled to fit in an ample amount of time to simply rest. I simultaneously struggled due to the lack of structure and routine I have settled into with work.

When I could fit in that much-needed-rest, I was just exhausted. I would sit in the park with my books and my laptop, ready to enjoy the sun when, in reality, I just sat there staring into the distance completely drained.

The fact I’d also gone through a period of work where I was finishing between 11pm and 2am every single night and having to work through the occasional weekend probably didn’t help either. It just meant I was exhausted before my week off, during my week off and now? Well,  I’m exhausted after my week off.

I started a new course of treatment at the hospital. They are trying to ‘de-scale’ my head as my psoriasis is getting out of control. They call the process ‘tarring’ and yes, that’s right. I sit there in my beautiful hospital gown whilst they put tar and various other concoctions all over my head. I’m then wrapped up in cling film, a shower cap is placed onto my head and I sit there for a length of time whilst I ‘bake’. Following this, they sit with an incredibly fine comb and ‘de-scale’ my head. They literally dig and scrape at the psoriasis in the hopes of peeling it off my head whilst removing as little hair as possible.

They want to do this 2-3 times a week and I hate it already.

I hate the psoriasis on my head. It’s itchy and it hurts. It gets infected and it makes my hair fall out. I’m also constantly leaving a trail of dandruff looking flakes everywhere I go. But the thing is, it’s also the least of my worries.

Along with psoriasis I have, psoriatic arthritis, cerebral palsy, epilepsy, a Volkmann’s Ischemic Contracture, nerve damage and ruptured muscles, kidney problems, endometriosis and the list of illnesses I’ve had over the years feels endless.

Oh yeah, don’t forget the bulimia now.

I’m almost half-way through my training contract and the department I am working in now is where I want to qualify. It’s where I want to work for the rest of my life following my training which means I’m so incredibly conscious of the time these treatments are going to take up. I’m terrified of not being allowed to qualify here for whatever reason and so I’m equally desperate to not give them any stick to beat me with, so to speak.

What’s worse is the way I look after these treatments. I have bits of scale that haven’t quite made their way down my hair strands literally just sat there and my hair is the most greasiest smelliest mess you can imagine.

It is oh so easy for them or anyone reading to tell me to put up with incredibly greasy hair for a short while but when I’m already so caught up with my body image I can’t shake this feeling of ‘ugly’ that’s seething through my body lately.

Even today people have been looking at and some have even commented on my hair and I actually cried over it. I cried because I’m tired. I am tired of frequently having to go to the hospital for something or other. I am sick of all these different appointments, treatments and medications that I have. I am just sick and tired of being sick.

All my illnesses and disabilities drain me completely.

Forever wishing I could know what it felt like to be normal because I just feel broken.

I feel so damaged and that makes me feel unworthy. Unworthy of my job, unworthy of my friends….unworthy of love.

And it’s those feelings that the ED clings to. It’s those emotions that the ED thrives off. That’s when it’s at its worst but just because I know that doesn’t make fighting it off any easier.

Number Crunching

I did that thing I wasn’t supposed to do.

I did it even though I knew it wasn’t going to do me any good.

I stepped on the scales and that pain I knew would arrive came rushing, burning through every part of my body.

I stood there, simply hurting.

8 weeks into recovery and I had gained some weight.

I could see it coming, I knew I had. I knew I felt bloated and bigger around my midriff. I mean, I’d spent hours criticising the way I looked before I even stepped onto the scales.

I ignored the fact I was now exercising 4-5 times a week. I forgot that it was the end of the day and I had been eating 3 meals a day like clockwork. I refused to accept I was wearing trainers and clothes when I took that fatal step onto the scales.

And boy, am I struggling with this weight gain?

I’m trying to reassure myself that 4 llb’s isn’t that bad but the Demon inside tells me it is. I’ve spent countless hours crying to my boyfriend because the need to restrict and the desire to purge have been at their loudest for the past 12 days.

It makes me feel embarrassed to need so much help lately.

I’m suffering from this constant fear that they’re all going to leave me.

Most of all, it hurts. Everything simply hurts and there’s no actual medication I can take that will numb the pain.

Going round in circles. Can’t face looking at my reflection but simultaneously can’t stop looking at my ‘imperfections’. Don’t want to eat my meals but fighting to make sure that I do.

At least I’m still fighting.

I’ve just spent the weekend in Manchester with my best friend. A trip we planned a while ago and if I hadn’t paid for my ticket, I may have given into the ED telling me to bail.

We did nothing. A few walks, a few movies and lots of cups of tea. But it was perfect and, as it turns out, just what I needed.

I needed nothing.

I needed time away from my place where, unfortunately, bad memories already exist.

I needed time to stop and breathe and think.

Time to just do nothing.

I feel better for it.

I’m trying to take some time to understand that just because I’ve gained weight, it doesn’t mean I’m fat. Just because the number has increased doesn’t mean I’m unworthy.

In fact, I’ve started to feel more ‘worthy’ than ever before.

And between you and me, I have learnt an incredible amount these last 8 weeks.

I’ve been using a compassionate mind work book, I’ve had 8 weeks of balanced meal plans and healthy exercise. I’ve had a few purges and hardly any binges and I’ve hardly skipped any meals.

It hurts and I constantly feel drained.

But I’m happier.

And whether or not I’ve gained 1-4 pounds…I’m definitely healthier.

And I’m sure that, one day, being skinny will not correlate to being ‘healthy’ but that, maybe those extra couple of pounds will.

Nothing like a train ride to dedicate some time to getting negative thoughts away from me ❤️

Instagram: @umbrella_adventures_

Internal Criticisms

The big, dreaded, over-thought-about-before, phone call happened on Thursday. It was supposed to be Tuesday but got switched last minute. That in itself freaked me out for a good 12 hours…

But deep breaths and I got there.

I was so incredibly nervous to hear my old therapist’s voice as I sat on my bed but as I did I felt relieved and safe. I wasn’t in his big warm comfy office, but I may as well have been.

I always thought the kidney surgery was to blame for my relapse. I had this month of being unable to eat and if I did eat I would throw up involuntarily and I lost weight as a result. I remember crying to friends about how hard it was but I don’t think I quite got across  the fact I was talking about the mental pain, not the physical pain from the surgery.

He tried to get me back to basics, to talk about what happened in the months before that illness and all of a sudden, I remembered:

  • “Peru Sunday” (although all of that is more than solved right now. It was SHIT. It wasn’t fair but it is what it is)
  • My dad forced me to meet my ten year old half brother and took me round some of my most favourite places in London (some of which are now too hard for me to go to).
  • Family arguments when they asked me to give them a substantial amount of money and I ended up threatening to get lawyers involved.
  • I’ve drifted from a best friend completely. That was a painful process which I tried to repair but I genuinely think we just drifted naturally.

I cried so much. All this pain coming out. My friends and boyfriend want me to talk to them but I struggle so much due to the fact they emotionally care about me. I’m not saying my therapist doesn’t care about me but there is an element of ‘he can detach his emotions from me’. So when I tell him things, I don’t see a cringe in his face or hear pain in his voice.

It’s easier to remember everything.

We discussed how it sounds as though my ‘critical voice’ is at a whole new high and it’s suppressing any sort of ‘compassionate voice’ that would soothe my feelings. He asked me what the voice says…

No one’s ever going to love the fat girl.
You should be grateful that you have a boyfriend, that someone’s putting up with you.
No one’s ever going to understand or love the girl who makes herself sick.
No one’s ever going 
to love you.
Everyone’s going to get fed up with you if you can’t recover, they’re justified to abandon you.
You’re so fat.

….

Then he asked me, who these phrases (oh there’s more than just the above) remind me of?…

My greek family told me at 10 years old that I would never find love because I was so fat.

An ex told me that everyone else would hurt me because of the bulimia, that no one would love me, that I wouldn’t find anyone else other than him and then I’d regret leaving….that I should be grateful.

An ex told me I wasn’t trying to recover. That he knew I was restricting and purging but it was 100% up to me to recover….I remember that one the clearest. That conversation hit me so hard, it made me feel like I was alone and couldn’t ask for help. It made me feel like everything was my fault.

The reality of what me and my therapist spoke about hit me so hard. I felt this lump in my chest as though I was choking trying to get words out. I had internalised all these horrible voices and was now repeating the phrases to myself.

And as I stripped down those phrases, as I looked behind the words I repeat to myself on a daily basis, it wasn’t me saying them any more. I could visualise the situation as if I was stood in a corner watching myself.

It was my greek grandma and my dad, in her flat in Athens, at the kitchen table praising my brother for eating so much food and then criticising me for eating the same. It was them saying across the table at a 10-year-old me that they would have to find me a rich husband because no one would ever love and want to marry the Fat Roly Poly.

It was a 13-year-old-me sat in the corner of a room whilst a group of ‘friends’ played spin the bottle but I wasn’t allowed to play because I was so fat the boys might have to kiss me and that’s disgusting. 

It was a 20 year-old-me being forced to do extra cardio and when the other athletes asked the coach why that was the case he replied, because unlike you she obviously has fat to lose. 

I remember each comment clearly. I remember my age, the room we were in, the clothes I was wearing. The comments clearly hurt me so deeply but I almost forgot that it was others saying these things because I started to, and still do, say them to myself.

So that’s my new task. My homework, so to speak, to keep trundling along with this recovery but to try unpack every negative thought I have about myself. To try detach that internal voice that actually isn’t mine.

It never was.

 

 

Just say this or that

I slipped up and he told me he was ‘frustrated’.

Since admitting my relapse the other week I’ve pretty much put every practical step into motion that you can think of.

I moved into his for the week so I could have that really close support (supervision too). We sat and made a meal plan, did the food shop and helped me prepare what I needed to. We made food choices based off healthy levels of exercise throughout the week. Spoke to my therapist and even someone at work. New food diary, new journal and off to a new me(!).

But I slipped up.

I tried so hard to battle that Demon’s voice and I lost.

I had one slice of pizza and I couldn’t even cope with that.

I felt forced to eat it, pretty much. Everyone else was. It was leftovers from our department pizza party last night (a party I couldn’t stay at for more than an hour because socialising around the alcohol and pizza physically scared me).

I told myself say no. I ordered myself to refuse.

Some may tell me that it’s as simple as that.

‘You don’t have to eat it. You can say no.’

Saying no is hard though.

Why couldn’t I have said no?

A slice of pizza wasn’t on your meal plan. You’re weak for saying yes. You’re weak for diverting from the plan. You should be ashamed. You’re going to gain so much weight.

All these thoughts running through my head seconds after I finished.

I felt dissociated from my body after that. And all of a sudden it was ‘done’.

I promised to text him if I ever purged and so I did. But my text made him sad and ‘frustrated’. I don’t ever expect him to condone a purge and he refuses to say the words ‘its okay’ to get that across. But sometimes I just need that. I just need to hear the words ‘its okay, we’re going to get through it.’

I’m tired of not being okay. Tired of being up and down with this illness. I was doing quite well and I’m so disappointed I couldn’t keep it going. I’m more disappointed that I’ve made someone I care about incredibly sad.

Shaking these feelings of shame and disgust is tough. I always knew it would be.

I wish I could have said no to the slice but I’ve also been on that awful side of the spectrum where I said no to everything. Where saying yes was the hardest word to get out of my mouth.

Trying to find that balance and trust that it’s ‘safe’ to do so.

Trying to trust myself more than anything, I suppose.

 

Instagram: umbrella_adventures.blog

Back to Basics

 

Apologies as there may be some triggering thoughts here.

So, I thought I was doing okay and there were times I thought I was fine. Or at least the ‘Demon’ told me I was okay. Convinced me I didn’t need help. That there wasn’t an issue because what I was doing was keeping me ‘slim’.

Well you know what, what I was doing also made me sad. It also made me cry at my best friend’s birthday party because it made me so scared to be around food, drink and others. It made me angry at myself for not losing weight and it made me so incredibly insecure that my boyfriend would leave me if he found out.

I started to notice the ‘tricks’ coming back into play. Double/triple-checking that my housemates most definitely were not going to be home that evening. Going to toilets on floors at work that I knew nobody went to. That bag that sat in my wardrobe waiting for me to sneak it to the bins outside. Telling friends I had already eaten or would be eating later when I’d already planned to skip those meals.

And nobody really knew.

That in itself made it easier but deep down I almost ached for someone to ask. For that one person to see behind my smile and recognise that I was not okay. I was generally happy but I was in so much pain over what I was yet again doing to my body.

And then it happened. I hit rock bottom just as hard as previous relapses and I picked up the phone. I sat in the corner of my room, I suppose it felt safe, and I text my boyfriend and said point blank I needed him. That I needed to go round and I needed him to help me eat and to help me ‘keep it down’.

I was so scared he would leave or refuse just like others in the past. I was simultaneously scared that he would be upset with me or that I would hurt him by admitting what horrible cycle I’d fallen into once. I felt weak. Like a let-down. A failure.

Damaged.

That’s how I felt.

Damaged goods yet again at rock bottom.

My therapist leaving London last year hit me hard. I had seen him for four years and whilst I was in a really good place the thoughts of having to see someone else and start this process yet again scared the crap out of me and so when I needed help I didn’t feel like I could arrange to go see someone new. To open up about my not-so-great life once more.

But I told my boyfriend and my friends what I needed. For the first time in our relationship I didn’t wish he would offer what I needed…I simply asked. I asked to live with him for the next week or so because I felt I needed supervision. I asked him to sit down and help me plan my meals for the week and to ensure I stick to them regardless of if I tell him ‘I’m okay to change X and happy to eat Y instead.’ I asked him to help me send an email to my old therapist to ask for advice (which was the hardest step of all) and I asked him to come along to dinner with my parents in case I couldn’t handle it on my own. I asked him to help distract me when those thoughts about purging came running.

And he did.

I was upset that he cancelled seeing his friends because I felt that made me a burden but deep down it meant so much to me to know he cared that much.

And I literally told him everything.

I told him every thought that plagued my mind before and after each meal. I told him when I was scared to eat and when I wanted to be sick. I told him every perception I had of myself throughout the day. I told him every negative thought that crossed my mind and I told him of ‘tricks’ that I was ashamed of. I told him of some of my darkest periods of this illness and he just listened.

He didn’t judge, he didn’t comment, he just listened. And I told him that was exactly what I needed.

That’s all I ever need because, in a way, it simply helps me identify what is going wrong and decide what is going to help.

So we went and planned my meals and some gym sessions. He held my hand in the supermarket and he held my hand whilst I ate. We sent those emails and we spoke about the physical implications of this illness – what worries him the most…and whilst that wasn’t a fun conversation…it helped. Each time I ‘panic’ I try to think about the following:

  • I don’t want to have a heart attack due to the stress I’m placing on my body.
  • I don’t want to further damage my liver or kidneys.
  • I don’t want to become infertile.

Each time is ‘the last time’ and each time is one step closer to being that actual last time.

Sometimes the rigid planning makes me feel weak. I criticise myself for not being ‘normal’ and not being able to ‘do this on my own’. But I think I’ve finally after all this time admitted that the practical steps are things I am going to have to apply for the rest of my life. It’s not about needing them because I’m ill but rather that it’s a way of leading a healthy lifestyle.

So here I am, day five. Almost made it to a week since my last relapse.

 

Instagram: umbrella_adventures.blog